After a terrible, toxic, experience with the Cabazitaxel/Carboplatin combination, I've had to reluctantly accept that chemo is, for me, incompatible (Since Dec 21st, I've had E Coli, severe anaemia, C Diff, Massive Magnesium deficiency, neutropenic sepsis, uro-specific sepsis, acute kidney trauma. The medical interventions have included: white blood cell replacement injections, blood transfusion, numerous magnesium replacement infusions, and weeklyelectrolyte replacement).
6 years ago, during a work trip to Australia, I had a PSMA PET scan at Peter Mac Centre in Melbourne. I was found to be a suitable candidate, and I now wish to explore this urgently and fully. As a Brit, I understand that I would have to fund any treatment privately. So, my first research task is to do a cost comparison. I'm aware that in Australia alone Pluvicto is available in Perth, Sydney and Melbourne. I also am aware that Plucivto is available in Germany, UK and India.
I'm sure fellow warriors have done a cost comparison - would anyone be willing to share their data, either here, or in a DM? I know that Peter Mac offers $6,520 USD per infusion. How do others compare?
Secondly, if I aim to be treated in April, I will have had 3 months with little treatment other than Dexamethasone. Does anyone recommend a holding mechanism that would halt, or at least slow, the spread of disease?
As ever, many thanks, in advance!
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CrocodileShoes
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I can be 100% wrong. I was searching for a similar thing, and I learned something.
I have been told all Pluvito or other target therapies go to testing according to FDA requirements. Many times, you will find cheaper prices in different countries because it is FAILED, and pharma companies can not sell in the USA or other countries where FDA approval is required to sell
That is a fair price if you do not have to travel far. India was certainly cheaper when we looked into it in comparison to the UK. But it was a long journey.
Hi CrocodileShoes my husband had 6 treatments of Lutetium 177 @ Genesis Cancer Care Windsor it cost £13000 per treatment 6th treatment was December 2022 + PSMA PET scan following 2 treatments @ £2500 each scan. He had a good result with some mets not detectable and some greatly reduced and PSA 0.99. By May PSA 4.6 and continued to rise by December 14.6. They did provide a courtesy car to and from the clinic in the cost.
Local MDT refused funding for a PSMA PET Scan as NHS they could only offer further chemotherapy which nearly killed him last time.
They did refer for a CT Scan which showed progression of the CT they did in 2019 prior to RT. The did offer R223 at New Cross Hospital Wolverhampton have had 2 treatments ALP was 106 now 72 and PSA was 14.6 and now 12.2. Fatigue and worry about bone mets (spinal cord compression) but still getting on with life both 80 years old.
After Chemotherapy was neutropenic 2 times and hospitalised and then admitted for multiple pulmonary embolism on Warfarin for life and after RT proctitis, a daily problem.
I got in touch with Mike Hofman from Melbourne a couple of times, he was one of the pioneers of Lu and looked at his wecam with a German consultant which we found on healthunlocked and we were very positive, but Mikes last email said you have to weigh up the long term value and his words financial toxicity. We had considered having more Lu, but travelling to Windsor and the short time it has given decided not to go ahead
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