UPDATE: PSA doubled, MO has had littl... - Advanced Prostate...

Advanced Prostate Cancer

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UPDATE: PSA doubled, MO has had little input

StayingSTRNG profile image
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first off I just wanted to say thank you so much for everyone who responded to my previous post. For someone who is an inexperienced and worried daughter, I really appreciated everyone’s perspective.

If you don’t recall, my dad’s PSA had gone up from 1.66 to 3.44 in about 2 months. His testosterone also went up from 6 ng/dL to 17. His MO did not speak to him about this nor did she check back at the results. After reading all you responses, we did call the oncology nurse a few times and left messages, eventually the message did get to the MO.

The MO stated that it’s not a real concern to her unless it continues rising, but she would schedule another appointment and blood test in 6 weeks. (His appointment will be on June 20th).

Since then, my dad has been having quite a bit of pain in his back and leg to where he has a very heavy limp. He had his nephrostomy tubes changed which we hoped might help as his tube was displaced. Following that appointment, his notes said that they ordered a nephrostogram due to ureteric obstruction from metastatic prostate cancer. These tube changes are very routine so we have never seen them put that information on there before, so fingers crossed there isn’t any new growths. His pain has not subsided since the tube change, he still has a bad limp and is in pain. His appointment with his actual urologist isn’t until Wednesday, we will certainly go with him and ask him as many questions as he can answer.

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StayingSTRNG
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Fightinghard profile image
Fightinghard

quick obervation - the testosterone should be kept below 50. Lower is better, but under 50 is good.

The PSA rise is concerning but usually the Docs want to see 3 consecutive rising numbers to confirm a trend before changing treatment plan.

Good news is that his PSA is still low so there should be several good treatment options ahead for him.

Try not to worry too much and enjoy each day with him.

pe43 profile image
pe43

Check the testosterone units, I think you meant ng/dL, not ng/L

StayingSTRNG profile image
StayingSTRNG in reply to pe43

yes sorry! that’s what I meant

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