I know that I don’t have advanced prostate cancer. Occasionally I’ll see a response to a question to the extent that if you don’t have advanced prostate cancer you don’t need to be on this site. I am very high risk and I’ve tried to find a site for me, but can’t seem to find one. So I’m going to go ahead and ask a question here.
How many men with prostate cancer and has had ADT end up with kidney stones?
Try this one:
healthunlocked.com/prostate...
But what makes you think there's any association between ADT and kidney stones? Some patients supplement calcium in a misguided attempt to maintain BMD while on ADT, and the excess calcium can cause kidney stones.
I had a kidney stone in right kidney back in June 2022 . Then in September 2022 I had one in right kidney and one in left kidney. Doctor told me that the calcium supplement that I was taking along with the calcium leaving the bone settled in the kidneys. I began ADT June 2020 and ended December 2021. Lupron and Bicalutamide.
TA
Please elaborate "misguided attempt to maintain BMD"
Im curious as to why.
Thx
There is no evidence that supplementing calcium (or Vitamin D) when serum calcium (or Vitamin D) is normal aids BMD. It is a known source of CV disease and kidney stones, however.
OK, I have my 3 month battery of tests coming Friday including calcium, I'll have to pay attention.
3 times as many as my monthly for Zytiga!!!
Meanwhile it's daily walking and Bowflex. I was measured at -1.1 at the hip 6 months ago. Not bad for 67!!
"Remember people dont fall down and break a hip, they break a hip causing them to fall down"
I have tried to tell many people the break comes before the fall!
I would enjoy reading about the Vit D association with CV disease if you have links?
I supplement Bit D because I've always been VERY low of it in my blood work. Even when exposed to sunlight AND supplementation. And we are aware of the incidence of those patients who have exhibited low D being associated with more aggressive PCa. So I try to maintain being at least "normal" and not "low". But now would be concerned with CV as you note.
Appreciate any feedback.
I meant that supplementing calcium can cause coronary blockage. Vitamin D has had no effect on cardiovascular disease in the DHealth trial.
Got it, I misunderstood, thank you for the reaponse. It's been hard to get my D levels into Normal range... 5,000iu daily and barely there, lol.
On Stones;
And just for regurgitating my Kidney doctor, the use of calcium supplements do not help with stones, even in a case like mine where calcium binds with Oxalate and allows it to be passed instead of collected. He recommended consuming calcium with and as a part of meals. Lol, o asked of drinking a glass of milk (like a 5yr old) would help, he laughed, but said yes, that's one way! Hahaha
So back to the OP... We are definitely at risk confusing Association with Causation in regard to the Stone issue, there's so many things associated with increased risk for stones. One is that if and when you've had them, you're 60% more probable to have them again. But if you drink at least 3qts of water per day, this is extremely reduced.
Good Luck!
I think the link you posted has a glitch In it.
Hi Jack54 You may want to check out Newly Diagnosed Prostate Cancer-Prostate Cancer Foundation. This group is for those who have been diagnosed within the last 5 years and who do not have advanced prostate cancer.
The first thing is to find out what kind of kidney stones you have.
nyulangone.org/conditions/k...
Calcium oxalate are the most frequent stones, caused by excess of oxalate intake and not necessarily by high calcium intake.
The stone that was sent to lab measured 3x3 mm. It was 70% calcium oxalate mono hydrate and 30% calcium oxalate dihydrate.
bone density solution.com is a good site
Basically weight bearing exercise as well as walking daily. Eating foods with calcium is also recommended. Sardines and tofu are excellent choices. Drinking water is also advised. Half your body weight in ounces. I remembered to put the word ounces in this time lol 💜💜💜
Water, water and more water until you have the urge to suck a fish...............
j-o-h-n <===<<< Senior management is about to spike my spikes....
Good Luck, Good Health and Good Humor.
j-o-h-n Sunday 04/16/2023 11:05 PM DST
Hahaha, yes, the highest reason with formulation of stones is not adding enough water to the cement mix! Lol
j-o-h-n
I love your humor and always have. We wives need that too so thank you 💜
I wouldn't pay too much attention to the cranky old men here.
I have had kidney stones.
I don't take calcium, but do take magnesium.
I do supplement with vitamin D and generally keep my labs above 50 but below 100.
My 78-year old husband has had two kidney stones in the last six months with no prior history of kidney stones. He's on Eligard and Xgeva but doesn't take any calcium supplements. Here are two articles, one from Mayo and one from Yale, which has a kidney stone clinic, about the need for dietary calcium from food, not supplements, to balance out oxalates in all kinds of foods, which can cause kidney stones.
newsnetwork.mayoclinic.org/...
yalemedicine.org/news/how-t...
Coincidentally, my husband had stopped drinking the smoothies he made for breakfast every morning with milk, berries, banana a few months before the first stone. He's going to start making the smoothies again and also add a few drops of lemon juice to a glass of water every day, which is another recommendation. He drinks a lot of water since he's a big exerciser, but he still got the stones.
it’s so frustrating. My husband kept getting stones too no matter what. Now he deals with pc.💜
Did your husband's kidney stones precede PCa treatment or start after getting ADT or bone drugs? My husband never had stones before. Per the Yale kidney stone center advice about getting calcium via food to neutralize oxalates in so many foods, he's adding back those smoothies. His calcium blood work is in the low end of normal.
I eat chamber bitter while walking around the garden,also known as stone breaker 😅
. Why do you say ‘I know I don’t have advanced prostate cancer’ with a Gleason score of 4+5? Also, why are you waiting 8 months for your next PSA test after it doubled in the 6 months between April and October of last year?
How much do you exercise and what kind? What’s your water intake?
My doctor has me at high risk. From what I’ve read, I feel I’m at least very high risk. There are no signs of metastasis. Haven’t had a PSMA yet, will ask for one on next visit. Sorry for not being a little more clear, my last PSA was middle of March and it was .39. The rise in PSA is probably due to TRT. Doctor says he will not be concerned until PSA hits 1.0.
I see. I was thinking you were wondering whether you belonged here since this forum carries the title ‘Advanced Prostate Cancer’.
Supplements are a quagmire of a few things that help a bit and many more that don’t. Explore at your will. Plenty of exercise and hydration works well for everything.
I am referring to the fact that I do feel that I don’t belong on this site. I wish I had paid more attention to replies to other posts where the person was definitely not Advanced, some of the the replies insinuated that that person didn’t belong here. I feel as though I’m on a fence and could fall either way. I do enjoy reading the posts on this site. I guess I’ll be on the fence for another couple years before I know that I’ve been cured.
Drink approximately a gallon of water per day and you'll not have a stone issue! Excess calcium, vit C and possibly dietary consideration comes into play.
Stones can be made of three substrates... If you get them, they get tested and then you'll know what's causing them. Trying to use a crystal ball thinking you'll avoid them before you ever get them isn't going to work.
My stones were Oxalate Calcium! And in all probability largely due to dietary changes because of pre-diabetes and eventual migration to being diabetic (ADT). So changed diet drastically, dropped blood glucose back to normal but wound up with stones. Oxalate is in almost all good stuff, and it is the exact opposite of what you need to eat for glucose control, ie, it's inversely relevant. So like everything, a conundrum!
But the kidney specialist I've cared for by, a Top Doc by the way, noted WATER WATER WATER, LOL. More so than diet, but diet being important as well. He was emphatic too about Vit C supplements being No Good! Anyways...
Be the Fish!
Good Luck
good morning jack
I don’t think I can direct you to a site that you may want or need. However, I can help a little with kidney stones. There heart are 5 types of stones, three of which are the most common
Calcium, struvite and Uric acid. My husband has had them in the past
. We asked his nephrologist to send them to the lab to see which one. The stone was lost in the process so we didn’t know 
Drinking lemon juice with no sugar had helped him with his pain is there anything else I can help you with?
💜
Hello Jack54. My father is 87 and has had prostate cancer for 16 years.
He is living a very full live and LOVES life and adventure.
He has had several kidney stone operations, and passed several over the past 40 years. 40 years is WAY before he had ADT, so he was already predisposed to his body producing stones.
Since his diagnosis, after his prostatectomy , and during ADT he did have one VERY SCARY ordeal. He ended up septic due to a very large stone lodged and blocking his flow of urine.
This took 3 days to "figure out" as the very known hospital of a very high rating, ignored my entire family telling them that he was prone to kidney stones, and that was most likely what the problem was.
He had EVERY symptom he had with kidney stones in the past, but he had NOT BEEN SEEN BY A UROLOGIST in the 2 days that he was there...and his urologist was out of town.
The hospital had marked on their charts that he already had seen his urologist - Even though my entire family was ADAMANT that not only had he not seen HIS urologist, but he had not seen ANY urologist.
When he was so sick and failing....my brother flew in from out of town, and 5 of us had to get adamant about seeing someone in charge so that he could have a scan.
Yep, Sure enough...he had a very large kidney stone that was pushing all toxins right back into his system.
He was prepped for surgery immediately, and came out fine. That was 7 years ago, and he has not had a stone since.
I am only telling this alarming story so that EVERY caregiver and every patient in here knows that when YOU know something that the doctors DON'T KNOW - BE LOUD. BE ADAMANT.
I don't think this has anything to do with ADT, but your question just hit a nerve with a past story.
Be well,
...and stay hydrated. Dehydration is a huge issue with kidney stones, and people over 50, that my dad has been told on several occasions.
D
Thank you for sharing D. I’m not prone to kidney stones. The stone I had back in June was my first.
Hope to keep it that way Jack and wishing you MANY long and strong years! Best- D
If you take calcium you should take other supplements, vitamin D and Magnesium are not sufficient. Please see learnwhatsup.com/prc/health... and health-reports.com/Osteopor....
How do you know you have a stone(s)?......................................... It's when you cry more than the day you were born..............
j-o-h-n <===<<< Senior management is about to spike my spikes....
Good Luck, Good Health and Good Humor.
j-o-h-n Monday 04/17/2023 12:21 PM DST
Never had before, but do now after 10 months ADT
As far as I am concerned, you are welcome on this site. It gives you an opportunity to ask questions and read what others are facing BEFORE you need you make decisions. It could save your life.
I can't comment on kidney stones but wanted to welcome you.
Advanced means stage 4, metastasized outside of the prostate.
I get kidney stones and have had them for 30+ years, occasionally. First they seemed related to Tums, so I don't take Tums any more, I take Pepcid for heartburn. Secondly, they seem related to hot weather and dehydration. Lately one passed seemingly caused by Almond-Cashew Silk which is heavy in calcium. fI've always passed without surgery. Sometimes I use finger massage to pass them and sometimes they pass without pain, unnoticed.
You belong as much as anyone does. This isn’t an elitist cite .. welcome Jack54😎✌️
I am somewhat of an expert on kidney stones. I've had stones ten Times since2006. Eight Times prior to prostate removal in October of2019. Got a stone two weeks after prostate surgery which caused me to become septic. Doctors put a stent in because of the freshness of the surgery. Worst two months of life until they removed the stent and stone on 1/10/2020. If you think stones hurt, you ain't seen nothing until you have a stent between your kidney and bladder. Doctor said if I hadn't come in that day the best outcome would have been losing a kidney. No fun
I had plastic internal stents for a yr . That was an upgrade for me after the tubes I had my first yr . It was all pure hell . I’m glad that you saved the kidney . So essential ! 👏👏👏👏😎
Stones are definitely not fun. On my first stone one, of the nurses that had had stones said that they were worse than child birth. I had stints on both occasions.
Rising PSA after radiation and ADT
When to introduce ADT after RP failure
Castration resistant after 20 months on ADT
PSA rise after stopping ADT with a prostate. 
After 15 months or adt what's next.
