Hello : I am 59 years old.Current... - Advanced Prostate...

Advanced Prostate Cancer

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Hello

Blueribbon63 profile image
21 Replies

I am 59 years old.Current diagnosis status: PC stage 4

PET scan shows

Extensive skeletal metastases throughout ribs, spine, pelvis, and scapula

I am on a treatment, but I am questioning myself, is it worth getting poisoned by all these horrible chemicals aka medicine? Vs. Living life, however long it is, at peace and surrounded by your loved ones?

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Blueribbon63 profile image
Blueribbon63
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21 Replies
Tall_Allen profile image
Tall_Allen

What makes you think it will be "at peace"? Those medicines, in addition to extending life, prevent a lot of pain and suffering. I've seen a guy who refused meds, and it wasn't pretty. For months he was howling in pain and he couldn't walk or go to the bathroom because his spine broke. His spouse moved to the far end of the house and left him in the care of several strange nurses on shifts.

Poowater profile image
Poowater in reply to Tall_Allen

I agree eentirely. He should be thankful for what modern medicine offers. They have their limitations but the benefits are greater for overall survival. He should realise denusomab can be a wonderful addition. All drugs have side effects. Osteocronosis of the jaw is remote if regular dental visits are made. Dentists are the experts on that condition.

Soumen79 profile image
Soumen79

All treatments are not poisonous, from every angle treatment is worthy

Echotango51 profile image
Echotango51

TA is right. I watch my brother died from PC in 2012, wasn’t a pretty thing too see. I’m going to do what my doctors tell me to do.

Derf4223 profile image
Derf4223

Getting a PCa diagnosis is tough. Learning it is metastatic is worse.

But the big question it raises is does one have a strong will to live?

PCa runs in my family and surviving until something else gets you is possible, provided you get SoC treatment and adjust diet and exercise. You need to do all 3.

PCa detected before one has pain and bone breaks and so on is almost certainly going to be paused if not helped by SoC treatments. SoC treatments, if mine are anything to go by, are not acutely painful (if you don't count the transitory needle pain of a biopsy or having a full bladder for RT).

The call is up to you. It's a free country. I choose to do everything possible to be there for my family, just like my uncles and father did with their PCa.

IvorOrr profile image
IvorOrr in reply to Derf4223

New guy here, what's SoC? Also, I applaud your courage and attitude.

Blueribbon63 profile image
Blueribbon63 in reply to IvorOrr

SOC stands for Standard Of Care

IvorOrr profile image
IvorOrr in reply to Blueribbon63

THX

RyderLake1 profile image
RyderLake1

Hello,

Fifty-nine years old? I am sure your loved ones would like to have you around for a few more years. I was diagnosed with Stage 4 PCa in 2013. Bone metastasis from my neck to my knees. Over the past ten years I have taken a lot of drugs and never once thought of them as poisonous. They are keeping me alive and allowed me to have a very good quality of life. For that I am very fortunate and truly thankful.

ARIES29 profile image
ARIES29

I agree with you blueribbon63, this ADT is poisonous, you can feel it robbing you of QOL but really it can be much worse as people here point out.

PSAed profile image
PSAed

Please take a step back and think carefully. At present you might be experiencing a common side effect of the treatment ...depression...and that will cloud your judgement. PCa is a battle for our lives...its' worth fighting for. Best wishes

Papillon2 profile image
Papillon2

I know you are just venting. We have all felt the same way at one time or another. I have had days that were so dark, I felt I could not go on. But I did. I did it for my loved ones, and for the members on this site. When you finish, please help us to beat this disease. Remember, the man that said he can't and the man that says he can are both right.

PSAed profile image
PSAed in reply to Papillon2

Off Topic I know but...".Two men say they're Jesus one of them must be wrong"- Mark Knopfler Dire Straits

j-o-h-n profile image
j-o-h-n

The saying goes "you make your own bed and....you lie in it"....At 59 years old....go for the gold!!! I'm 86 and have been fighting those tiny bastards since 2002. Who knows you might find it fun......

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 02/14/2023 11:15 PM EST

LastMohikan profile image
LastMohikan in reply to j-o-h-n

it 😀is nice to hear you dear j-o-h-n

j-o-h-n profile image
j-o-h-n in reply to LastMohikan

Thank you sir......One day I'll introduce you to my cousin: Tommy Hawk....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 02/15/2023 12:43 PM EST

Blueribbon63 profile image
Blueribbon63

I was a long distance runner for many years, I am out of shape for running but I do try to walk as much as possible every day. Thanks

Howie59 profile image
Howie59

I just turned 54. Found out in June 2022 I had aggressive, advanced stage IV PC with bone mets in pelvis, thoracic spine and ribs. 10 of 10 biopsy samples showed cancer. 4 of them Gleason 9's and the rest 7's. The only symptom I had before getting a PSA test was night urination for about 2 weeks prior. I still don't have any other symptoms but PSA is now 793. I chose alternative treatment first. They slowed it down a bit but due to the "aggressiveness" of what I have, it still advanced. I have been blessed with no pain or major problems. I haven't even had to miss any work up to this point, except for doctor visits. Now facing the chemo decision. Do I really want to do it? No. But in the absence of anything else available, it appears to be the only option. Promising stuff happening in research with Keto and D.O.N but probably more than a year away from being available. "peace" is not found in the cancer, the treatments, or anything else related to it. I am glad I find my peace in my Lord and Savior Jesus Christ. That's where my hope lies and it is He, with my wife and son's amazing support ,that will get me through this regardless of the consequences of the cancer or the treatments. My God can, but even if He doesn't, I will trust in Him. Mercy Me-"Even If"

Blueribbon63 profile image
Blueribbon63

Amén 🙏🏻

u302000 profile image
u302000

Check out Dr. Scott Tagawa and Clinical Trial's of LU -177-PNT2002.

At least you might skip the Chemo docetaxel.

Cheers,

Buddy

Kenny68 profile image
Kenny68

I decided to go off treatment on 2/23 as I could no longer tolerate Lupron . I have advanced prostate cancer… I decided to live life the best I can for as long as I can.

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