After my first post yesterday here are a few brief details.
Diagnosed in February 2021 with a PSA of 37and prescribed a 2 year course of Prostap by 3 monthly injections. this had the effect of immediately lowering PSA to negligible. This was very quickly followed by a course of Aberaterone {Zytiga} which I was able to tolerate for about 10 months. It had to be withdrawn due to high liver readings.
A 37 session course of radiotherapy was prescribed in February/March 22.
I am now at the end of all prescribed treatments and had a consult with oncology last week re going forward which they have recommended quarterly blood tests to monitor PSA, still reading undetectable.
I am just a little concerned that no further treatment planned.
Other than your PSA, what test results did you have? Was there spread beyond the prostate? If your PCa was confined to the prostate, and you've had your full course of radiation and most of a followup course of ADT, you're kind of in the "wait and see if it comes back" mode. Nerve-wracking it can be, but many of us would gladly trade places with you! Just follow up as prescribed by your doctors, live as healthy as you can stand, and enjoy life.
We are following whole food plant based diet. No junk. No red meat. No booze. He is no evidence of disease. We had 39 EBRT after his Gleason 8/9 Pirads 5 MRI pattern. We aren’t waiting for anything. Living lfe full on. He is 77. You’ve been given a 2nd chance. Change the stuff that you can which may have caused you to get cancer. Like booze, stress, smoking, excess weight. More veges less crap. More exercise. More travel and more calm.💕
Hi Acsec 34. Stage 3 with traces of cells in lymph nodes sept 20 PSA 25 Started Zytiga 1000gms + protrap monthly Dec 20. Monthly bloods. march 21 had liver enzymes so told stop Zytiga monthly later bloods fine so down to 500 gm dosage PSA has been non detectable since June 21. Getting 3x Monthly prostap with 500 gm daily Zytiga. Downfalls hot flushes nights + summer days lack of energy Keep active by walking daily and watch diet with right foods last visit oncologist said remain on same dosages maybe for life after 2 years have adapted to tolerance of side effects Hope you continue to maintain lower PSA
What is your Gleason? Do you have metastasis? Not sure where youvare located. You could always go get a 2nd and 3rd opinions. My husband went to 3 oncologists who specialized in advanced oristate cancer at top hospitals and they all had sane treatment plan so he felt better about doing that plan.
Here is my 'woulda-coulda-shoulda' list of stuff I will do differently if and when I come back to this world again (joking). But take a look as see if there some potholes that I hit head on that you can miss. I only send this as you are seeking out 'what to do next,' and I only wish I could put this disease in reverse and back up and try this again; I cant. So learn from us. That is the basis of this site.
Also, I just got my penile implant after waiting 2 1/2 years after my RP and 18 months after my RT...if I could that over again I would have given up on trying to 'wait and see' if my penile tissue was going to ever come back...it was not ever going to normal again after radiation. If I could that over again I would opt to get the implant done right after I finished RT...the longer you wait the more atrophie, scaring, fibrosis and damage you will do to your penile tissue. Your Dr and my Dr did not tell me anything about this; told me I would lose 1cm in length; no Brother is a lot more than that. Once you lose length and girth it is never coming back. So think about 1) are you going to be active and 2) if so move A.S.A.P. TNX
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PSMA PET Showing No PSMA Avid Metastases Again 
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