Still here today: I was diagnosed with... - Advanced Prostate...

Advanced Prostate Cancer

21,056 members26,262 posts

Still here today

stillheretoday profile image
18 Replies

I was diagnosed with prostate cancer in January 2017.

Had my prostate removed in March 2017. PSA was ok for a while but started rising in March 2019.

Had 35 radiation treatments April-May 2019. Again PSA was ok for a while but started rising in Spring of 2021. A Pet scan showed a spot on my sternum. Had 2 weeks of radiation. In February 2022, PSA jumped to 80, 2 weeks later it was 165. My insurance paid for a 2nd opinion from Mayo Clinic. They recommended a 3-prong treatment approach. Lupron, chemotherapy, and Zytiga. Started the treatment in March 2022. In August my PSA was undetectable. I'm still taking Zytiga and Lupron and my oncologist started me on Xgeva. Just saw my oncologist on Dec. 27th and my PSA is still undetectable. So far, so good.

Written by
stillheretoday profile image
stillheretoday
To view profiles and participate in discussions please or .
Read more about...
18 Replies
6357axbz profile image
6357axbz

how many chemo (docetaxel?) infusions did you have?

stillheretoday profile image
stillheretoday in reply to 6357axbz

I had 6 infusions.

Tall_Allen profile image
Tall_Allen

Great news!

Zengal79 profile image
Zengal79

Wonderful news! Go seek what sets your soul on fire and do more of it. Enjoy these times of smooth sailing and focus on the positive. May you have many more years of longevity!

Kaliber profile image
Kaliber

great news to start the new year out with. I echo Zengal79 to do your QOL list too.

❤️❤️❤️

Chrisbaird profile image
Chrisbaird

great news stillheretoday I been on protrap ( H T) 3 monthly 500gm Zytiga 5gm prednisone daily for past 2 years last 20 months non detectable PSA combination seems to work for me at present discuss coming off the dosages but advised to continue. Hot flushes at night and lack of energy main problem but taking tablets to try reduced the flushes Hope your treatment Continues to keep PSA down

Flash64 profile image
Flash64

Congratulations! We were diagnosed around the same time and have travelled different paths of treatment, but now we’re in a very similar place.

anony2020 profile image
anony2020

Seems you got it right. Well done.

Dont mind me. I am layman. 😊

PSAed profile image
PSAed

I love these good news stories, such a breath of fresh air. Still here today and hopefully you'll be saying the same in 15 more years time! The very best of luck to you and your family.

BobbyMac07 profile image
BobbyMac07

Happy for you!

Wags4300 profile image
Wags4300

great news.. for you.. I was diagnosed in April 2019.. Gleason 6.. Lupron for 6 months then 25 treatments with Proton Therapy at the Proton Center in Atlanta., after treatment, stayed on Lupron for a year.. as of November 2022..still undetectable..0.05.. fingers still remains crossed though…

Hailwood profile image
Hailwood

That is great news my friend.

Okay4now profile image
Okay4now

Glad to hear that - great news !!

ggbk profile image
ggbk

Great to hear good news. I have had a similar course but four years ahead of you. I am off zytiga, lupron and prednisone and still have an undetectable PSA. There is hope!

George

Scout4answers profile image
Scout4answers in reply to ggbk

great to hear that ggbk

swwags profile image
swwags

keep fighting the good fight

anonymoose2 profile image
anonymoose2

Thanks for the update. 👍

grahaminator63 profile image
grahaminator63

Great News!!! Keep up the fight!

You may also like...

Still Here

from teaching in '98. Have been on Lupron over 2 yrs; finished zytiga & xtandi. Am seriously...

still here

now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a...

I'm new here. Introducing myself.

osteopenia - Dec., 2019. PSA started to creep up to 0.7 by March, 2020. Added Zytiga April,......

New here, diagnosed age 52, Gleason 10

yearly psa test since 2006 because of family history of PC. Psa had always been near 1.0. 01/2013...

Should/Can I take zytiga/xtandi et al without metastasis diagnosis

Adjuvant radiation (prostate fossa only, with Lupron) 2017: Post radiation PSA = undetectable....