Plan B: dashed or still ok? - Advanced Prostate...

Advanced Prostate Cancer

21,045 members26,252 posts

Plan B: dashed or still ok?

groundhogy profile image
12 Replies

Hi,

Is Plan B still viable?

Plan B was to do Greenlight, External radiation, Brachy. There are several papers on this path. Its not new.

My current urologist, after the cystoscope, announces, you have no median lobe, therefore we shall do Urolift and not greenlight. And we can use the clips for fudicials!

I pushed back in a portal message. He called me from his Florida vacation at 8pm and heatedly berated me. I capitulated. Frightened.

Now that it's over, I am having grave concerns about this.

What he just did was punch six holes through my prostate, placed sutures through the holes, and put the whole gland in compression (squeezed). Stuff is going to come out. On both sides, internal and external.

So I am wondering, what happens to the "stuff" that is laying just outside the prostate?

Is is carried off? Does it just lay there?

Not sure what to do now.

Is my treatment path the same?

Thanks for any help or suggestions.

gh

HISTORY:

-First PSA rise detected 1yr, 7 months ago. (Oct 2020)

-PSA max was 3.5 before biopsy.

-Biopsy found G(4+3) (Dec 2021).

-Unfavorable intermediate

-6 month Lupron, 3 months ago (March 2022)

-Testosterone currently at 11.

Written by
groundhogy profile image
groundhogy
To view profiles and participate in discussions please or .
Read more about...
12 Replies
Tall_Allen profile image
Tall_Allen

What do you mean by "stuff is going to come out"?

groundhogy profile image
groundhogy

Blood, ptostatic fluid, cancer cells?

Cooolone profile image
Cooolone

Heatedly Berated you...?

Really!?

I'd move on without a second thought! And if in person, the doctor would probably need a dentist!!! Lol... Or at least ear plugs! Hahaha

If the doctor is so wound up about an opinion (yours) or question you may have, and somehow or another it abraded his/her "EGO"...

I would say that their ability to make sound judgement on your behalf has been compromised! Period!

How would you know going forward the doctor wasn't chosing a path just to "show" you off... As being right (him/her) and you wrong and not a decision based upon what's best? Anyways...

I've had in depth conversation with my team, various members at different times. I will push the envelope where I feel it needs to go and get their educated and highly professional opinion to take into consideration before "I" make my decision as to what "I" want to do! At no point would I tolerate being talked down to, or handled in any derogatory manner...

It's our body, and our decision(s) to make. The best will guide us to the right decisions, and the very best do it in a way that lets us think we made that decision all on our own! Lol

And maybe, just maybe the doc had a bad day... Or he's a perpetual dog kicker!!! I think the latter, as Leopards DON'T change their spots!

Good Luck & Best Regards

middlejoel profile image
middlejoel in reply to Cooolone

On the other hand, he called at 8pm while on vacation. I can't evn get my do to answer my emails.

Don_1213 profile image
Don_1213

Do I understand correctly? When you said, "What he just did was punch six holes through my prostate" - this has already been done?

My experiences with most urologists (one exception) haven't been good. Urologists do seem to be prone to God syndrome, all-knowing, and that sort of thing. I think your question certainly is valid and no reason for him to flip out. I've met two sorts of MDs - ones who welcome communications (and generally give you an email address to use) and ones who only will talk to me when he's getting paid for (Medicare reimbursement).

The ones who welcome communications have been great, we've had meaningful discussions on treatment options. The ones who want to be paid to talk - much less so, they seem to expect you'll just do what they want to do to you without any objection or discussion.

I hope you have one of the communicative ones on your team (medical oncologist, radiation oncologist.) If so - ask if they have a urologist they can work with, and let them know why you're unhappy with the present one.

Damn, bad enough fighting the disease.. it really sucks when the MDs join in the fray.

groundhogy profile image
groundhogy

You all don't really know my back story.You notice this is Plan B.

I have had a horrible lengthy journey through this.

All alone.

Anyway, I can not really focus on that. That is a discussion for later.

I am in hand-to-hand combat right now.

Right now I am trying to determine whether my current path is still the best thing I can do for myself.

Given that I have had a urolift, what are the chances that PCa cells have been pushed out, and if so, what are probabilities that they travel? Probabilities that they remain viable cells?

Hopefully the giant brains on this forum will put in a couple of cents and venture a guess.

groundhogy profile image
groundhogy

If the debris that came out sits in place, it will still be in the proposed field of radiation.If it moves and remains viable, it will not be in the field of radiation.

j-o-h-n profile image
j-o-h-n

Sci Fi Movie?

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 06/10/2022 6:26 PM DST

groundhogy profile image
groundhogy

Name a si-fi that is worse than PCa..

groundhogy profile image
groundhogy

I know there are men on this forum that are smarter than any doc I have seen.

Cooolone

middlejoel

Don_1213

Thanks so much for your responses.

I really appreciate your help.

I will continue on ..

Bonez profile image
Bonez

If he did a Urolift, I thought it opened the urethra up for easy flo not compress it?

I had external radiation treatment for prostate cancer and after 5 years have no problems other than low testosterone and frequent urination at night. Urologist recommended Urolift to resolve the frequent urination at night but scar tissue remains because of radiation and I wanted to know if anyone has had a urolift after having radiation treatment and how did that go?

groundhogy profile image
groundhogy

My impression is that urolift is fairly new and there isn’t alot of info on what you are looking for, but i could be wrong.

I would suggest creating a separate post with your question and you may get more responses as it will show up at the top of the list for all to see.

But my opinion is that urolift is quick and easy for the urologist. Quick and easy for the patient (normal patient- unradiated). But effectiveness is not as good as other options.

Post radiation patients have to be very careful as they tread. Do lots of research.

You may also like...

Back to plan B - No longer chasing Lu177

where PSA went down to 1.1 (previously 117 at start of chemo). He got a break from it for 2 months,...

Does my MO’s plan with UCLA’s PSMA scan make sense?

negligible PSA? I thought it just scanned for anything extruding PSA? 2. Does this plan make sense?

PSMA Scan and HU Altered my Treatment Plan

undetectable PSA with IMRT to prostate bed (no ADT) 2nd BCR: February 2018. Current PSA 0.4. PSMA...

Bone met biopsy = [b]PSMA-POSITIVE, PSA-NEGATIVE TUMOR[/b]

importantly monitoring progress of PSA-NEGATIVE metastases? My PSA was never over 1.1 before...

QOL - Frankenstein the Ballet - Plan B in Action