RO (Radiation Onco) appt this am, the... - Advanced Prostate...

Advanced Prostate Cancer

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RO (Radiation Onco) appt this am, then penultimate Chemo #17 in pm. QoL post/pix comin right atcha

dockam profile image
50 Replies

The RO - Dr. Mariscal, whom I met a few years ago at a ZERO 5k in Bakersfield, wants an MRI guided biopsy first. Then he can see if there's anything actionable🤔

I then went up to the chemo floor and was able to get seen an hour 1/2 earlier. So, depending on when I can get that biopsy, the radiation may not happen till next year.

I lucked out again cuz they put me into a chemo suite again. "Movin' on up to the Eastside" :-)

youtu.be/SvFqpxolW4o

Chemo went well, the actual input takes an hour. Yes, I did squats, leg lifts, scissor kicks, and I also danced to : youtu.be/AGSuuS_n24Q The nurses said they dug my music :-)

I took a 5k hike tonight for the Lil Great Wall virtual walk and that sky was gorgeous. Was better in person

QoL can be just right outside your door

Fight on y'all

Mahalo - Randy

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dockam
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50 Replies
Seasid profile image
Seasid

you can't have a biopsy while you are undergoing chemotherapy.

Seasid profile image
Seasid

your PSMA PET scan SUV max value was high, I believe about 80. Why would you need to get a biopsy?

My 68Ga PSMA PET scan SUV max value was 14 and they plan to SBRT the whole prostate.

i would like to understand the purpose of the prostate gland biopsy.

dockam profile image
dockam in reply toSeasid

RO wants genetics done on tissue samples to maybe guide future treatment

Seasid profile image
Seasid in reply todockam

1. but that genetic material will come from your prostate and not from your mets

2. it will delay your radiation therapy SBRT of the prostate

3. Your cancer in your prostate is very agressive SUV max value above 80.

4. that proposed biopsy may even spread your very agressive cancer outside of your prostate

is it worth to do a biopsy?

I would just simply radiate it

Kaliber profile image
Kaliber

keep us posted on the news of how everything goes bruddha. Hoping you get favorable results.

💪💪💪❤️❤️❤️

dockam profile image
dockam in reply toKaliber

Sure will and Mahalo Bruddah." We are Family, I got all my sistas with me."

youtu.be/uyGY2NfYpeE

Fight on Brother

PS - got my paella pan, chorizo, rice. Gonna take a trip to 99 Ranch in Van Nuys for fresh seafood

If it comes out, I'll post pix

Eat on

Randy

Kaliber profile image
Kaliber

sounds like you are about ready to go there buddy …. I’m looking forward to your prep info and taste tests of course. Pictures too.

the hammer says she thinks she can do paella in her large cast iron skillet .

We are making our final cioppino this weekend , just need clams in the shell ( already have clam meats ) and a chunk of halibut to prepare. I’m taking the etrike up to the market this afternoon to get the goods. I’ll try to remember pictures this time yayahahahaya. Moving on to paella next.

What better QOL item for us croakers than exploring culinary delights. On the road at exotic destinations or right there at home. Culinary fun is a dramatic QOL booster. Good family togetherness event too. It’s all good bruddah. I’m of the belief that positive uplifted attitudes will always help the medicine go down and work better … just say’in.

❤️❤️❤️

dockam profile image
dockam in reply toKaliber

Yes Sir, positive Vibes only😊

Gustatory delights can also take you on a journey

youtu.be/ozl3L9fhKtE

Fight on, Eat on

Paella pan and etc
Kaliber profile image
Kaliber in reply todockam

alright buddy …. Let’s get that chorizo cooking , looks like you are ready. I’ll be interested in how well that rice did. Package says it the right kind .

When you get it finished, I’ll fly one of my drones down and get some take out yayahahahaya. ( only goes 45-55 mph tho )

I just got back from the Asian Market, seems like they have everything…. It’s a BIG market.

Fresh clams , they have a big aquarium behind a glass window … clams beside the lobsters and some kind of smallish fish. That halibut will become a pile of 1.5 “ X 2” squares ….a little later.

❤️❤️❤️

Fresh clams and halibut… fish is fresh too, cut this morning.
CAMPSOUPS profile image
CAMPSOUPS in reply toKaliber

Im salivating. Even with chemo mouth. lol.

dockam profile image
dockam in reply toCAMPSOUPS

Lol, Kaliber and I trying to get as many people here drooling with our Food Porn🤣

CAMPSOUPS profile image
CAMPSOUPS in reply todockam

Love it!

CAMPSOUPS profile image
CAMPSOUPS in reply toCAMPSOUPS

Only had Peala a few times. But I had it every night of 4 nights in Barcelona on a work trip at the hotel. The whole nine yards. Everyone comes out for dinner around 11 pm.

Love Chorizo but none on hand however reminds me I took advantage of a sale and now the Smoked Kielbasa, no nitrates, the good stuff might expire soon.

Wife and I better plan on some "snacky food" The Kielbasas' in a toasted brioche hot dog bun, Japanese yellow mustard, and my wife's homemade mild sauerkraut.

dockam profile image
dockam in reply toCAMPSOUPS

Yum!! I love pretty much all kinds of sausages. In Hawaii, we have Portuguese sausage or linguica in mild and hot. Hawaii was and still is the amalgamation of a ton of cuisines due to the import of mostly Agricultural workers: Chinese, Filipinos, Samoans, Japanese, Koreans et al

CAMPSOUPS profile image
CAMPSOUPS in reply todockam

That's the truth. My worldly travels individually included all those countries (except Samoa). But I would love to go to Hawaii (never have) The idea of that amalgamation is something I can relate to. Gotta be otherworldly.

dockam profile image
dockam in reply toCAMPSOUPS

Then Brother, if you ever need a guide in Hawaii, I'll meet you there

dockam profile image
dockam in reply toCAMPSOUPS

Cooking, hiking, travelling are all part of the QoL that Kaliber and I have been advocating for our members. Slowly those initial ripples have coalesced as more post their QoL pix

Fight on, Post On

Randy

Kaliber profile image
Kaliber in reply todockam

❤️❤️❤️

Kaliber profile image
Kaliber in reply todockam

ok broddah ….. here it is. Smoothed out the bumps from last time…… a bowl full of bliss …. Wow.

Seafood cioppino
dockam profile image
dockam in reply toKaliber

Yeah babeeee, that looks so delicious. Yum yum yum

Enjoy Brother

Fight on Feast on

Randy

Kaliber profile image
Kaliber in reply todockam

I keep eating it, but I’m starting to get a fin growing out of my back. Yayahahahaya yayahahahaya. Gonna take a cooking break, then on to paella next …. after I get your tips and info n yours.

❤️❤️❤️

dockam profile image
dockam in reply toKaliber

Hey, this you in the video youtu.be/-c1-Y6YWS1w

I'll be the test case for the paella. I already seasoned the paella pan with olive oil

My Mom in Law was Puerto Rican and she made and awesome arroz con pollo Chicken and rice. Just a version of paella

Fight on Cook on

Randy

Kaliber profile image
Kaliber in reply todockam

yea …. Flipper seems more appropriate than jaws yayahahahaya

Scout4answers profile image
Scout4answers in reply todockam

You guys have become our very own version of the "Galloping Gourmet" at PCa place.

Fight on Randy and keep the QOL s coming.

dockam profile image
dockam in reply toScout4answers

Yea, LOL, this has escalated in a great way :-) I love to cook, and that along with my trips, hikes etc keeps my PCa concerns at bay

Fight On, Live on

dockam profile image
dockam in reply toKaliber

Lol, drone delivered, something Amazon is trying to do😂

That seafood looks yummy, I found an Asian Seafood place a bit closer than the 99 Ranch in Van Nuys.

The photos show fresh fish in ice

And those rice cooking instructions say 4 to 1 liquid to rice, that's quite a bit. Might take a while to make the Soccarat, the burnt, crispy bottom

Lol, Imma have a burnt, crispy bottom after Southern Area radiation 😜

Might be short on time, as I'm gonna meet pts at Red House BBQ, they are selling Tri Tip Sammies to benefit the family of their tragically killed 14 yr old😭

The fundraiser that I started is already 2.5 times the original goal💙

tehachapinews.com/news/barb...

Directions to Island Seafood
Kaliber profile image
Kaliber in reply todockam

man, you are having a food orgy yayahahahaya yayahahahaya. Tri tip, paella . See what a good guy you are …… all that positive karma should pay off bigtime … you deserve it.

💪💪💪❤️❤️❤️

dockam profile image
dockam in reply toKaliber

I was speaking to pts, telling them to show up for the Tri Tip sammies on Sunday, and I said that I am so fortunate to be here 8 years later with a #stageivpca diagnosis when others didn't even get a chance to say goodbye or anything, they were just here one minute then gone :-(

So, with whatever time I have left, I wanna do good positive things, even something lil like make a pt laugh, hold the door opened, say good evening to others on my hikes and post QoL stuff here.

youtu.be/PivWY9wn5ps

Fight on, Cook on, Laugh on, Smile on

Randy

Kaliber profile image
Kaliber in reply todockam

being a dentist, you’ve already spent your life in the humanities helping people with their dental health. Amping it up , especially now, is pretty kewl.

💪💪💪😁😁😁

dockam profile image
dockam in reply toKaliber

Yea, going big, before I go dead :-) Trying to get more ripples emanating out and impacting others in our Great Pond of Life :-)

youtu.be/E5ngugFBcaM

"Reach out and touch

Somebody's hand

Make this world a better place

If you can

Take a little time out your busy day

To give encouragement

To someone who's lost the way"

Fight on, Charity on

Kaliber profile image
Kaliber in reply todockam

you da bomb bruddah, the world needs a whopping lot more good guys like you. 💪💪💪❤️❤️❤️

dockam profile image
dockam in reply toKaliber

Mahalo nui loa - Thank you very much. Maybe it's due to Low T? LOL

I'm humble and lovable, just like Underdog

youtube.com/watch?v=_jyy8BG...

I've told my pts that one should "spread their light and not extinguish others"

Be well Brother

Randy

Kaliber profile image
Kaliber in reply todockam

❤️❤️❤️

Scout4answers profile image
Scout4answers in reply todockam

Randy you are having a positive effect on me. I need to do more to give back. Let me re-phrase that... I will do more to give thanks for the time I have been given.

dockam profile image
dockam in reply toScout4answers

Yass! Brother, as I said above, I've been given extra time, and esp after that 14 yr old Kaedin was killed - I gotta do more positive, uplifting in my lil world whilst still here

#makeripples

Fight on, Shine on, Love on, Live On

Randy

Gandalf Quote LOTR
Kaliber profile image
Kaliber

if you have some of that chorizo left… make some huevos rancheros and pour a thick line of that red pepper salsa right down the middle. Doesn’t get much better than chorizo huevos rancheros in the morning with that cuppa kona coffee.

Just say’in

dockam profile image
dockam in reply toKaliber

That sounds yummy, but me being a Chinaman means Fried Rice with leftover protein

Kaliber profile image
Kaliber in reply todockam

hey , you gotta keep an open mind and even more open pallet. Yayahahahaya yayahahahaya. Too many gastronomic treasures out there to miss any ….

😁😁😁

dockam profile image
dockam in reply toKaliber

I have eggs in fridge, I'll whip up what you suggested and post a pic :-)

Kaliber profile image
Kaliber in reply todockam

should be delicious…. Yayahahahaya

Kaliber profile image
Kaliber in reply todockam

I love making fresh salsas and we have a famous tortilla chip factory here in town. Most of all , lately in Mexican food I love to make ceviche and have made many different kinds , several ways. Seafood my favorite , of course yayahahahaya yayahahahaya

Shrimp ceviche with Hornitos Plata shooters. Lime wedges, lime sea salt ( for back of hand ) needed too. In the picture I squeezed the limes into a second shooter glass.

I sometimes have Dos Equis instead of Hornitos or both depending upon if I feel naughty that day yayahahahaya.

Seafood ceviche with Hornitos Plata shooters.
dockam profile image
dockam in reply toKaliber

Oh Brother, that looks delicious!!! And good for you, have a shot with.

Enjoy Life Bon Appetit mi Amigo

I need that drone for a ceviche drop off here

Kaliber profile image
Kaliber in reply todockam

yayahahahaya Hope no seagulls on the way . If they hit the props might be sliced chicken breast.

Cooking with lime juice, who wudda thunk it ? Yayahahahaya

Kaliber profile image
Kaliber in reply todockam

speaking of that … dunno how much time you lived in Hawaii, but have you heard of Sunrise Farms ? For decades I bought my kona and kona peaberry direct from that farm. Eventually Starbucks came along and made him an offer he couldn’t say no to. Left a big clientele of connoisseurs swinging in the wind. We took his whole crop every year. Later he got back to me ( I spent a fortune there ) but I had moved on to a new mega supplier in western Canada.

dockam profile image
dockam in reply toKaliber

Born In Hawaii in 1957 before it became a state in 1959. Left in 1975 for College, then Dental school. Not familiar with Sunrise Farms. This one: hawaiiorganic.org/marketpla...

Kaliber profile image
Kaliber in reply todockam

Roger that, thought it was a long shot, but you never know. Lotta coffee farming over there 😁😁😁

Seasid profile image
Seasid

if your PSA is above 5 or even better 10 you could ask your MO for a liquid biopsy and proceed with the SBRT of your prostate as soon as possible instead of waiting to do the real MRI guided biopsy of your prostate.

can you please check if your SUV max is really above 80 or is it a mistake?

your reply would be appreciated

i wish you all the best

dockam profile image
dockam

PSA at 6

PSMA scan impressions
Seasid profile image
Seasid in reply todockam

why don't you do Guardant360cdx liquid biopsy now?

you could avoid the MRI guided biopsy of your prostate and you could get back your actionable mutations in 4 weeks?

can you ask urgently your MO for that?

dockam profile image
dockam in reply toSeasid

Thanks, I'll email my MO. Have a great weekend

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