Purpose of ADT Vacation?: Hi Guys. I'm... - Advanced Prostate...

Advanced Prostate Cancer

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Purpose of ADT Vacation?

retiredguy99 profile image
27 Replies

Hi Guys. I'm new here. Diagnosed 12/20. One of nine cores was positive : Gleason 7. PSA was 120. Bone mets on spine but nowhere else. Mainly on C7 and L4. No bone pain. Two shots of Firmagon 12/20. Started quarterly shots of Eligard and daily 1200mg abiraterone plus prednisone Jan. 2021.

By July 2021 PSA was undetectable and still is. Fortunately I'm tolerating the drugs very well but the big problem for me is zero sex desire and ability! Can anything be done about that?

Also, I've heard about stopping ADT for a period of time but I'm doing well and I guess I might be afraid to stop. Should I just count my blessings and keep doing what I'm doing? Thanks.

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retiredguy99
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27 Replies
DarkEnergy profile image
DarkEnergy

For me, ADT Vacation was a pipe dream. By the time my testosterone was inching up, my PSA was shooting up faster.

But, but, but, did I say but?

This was before I did radiation therapy (RT), so should have planned this ADT vacation some time after RT. So will I try vacation again, yes, if still hormone sensitive, the risk is low...

retiredguy99 profile image
retiredguy99 in reply toDarkEnergy

Thank you for your reply.

Boywonder56 profile image
Boywonder56

You pays your money yuse takes yer chances.......the g7 says the cribiform at pathology was not..." aggressive".....but you had mets...did u have pin...to have mets with one core positive....either the doc was a bad shot....or your fn lucky one hit something.......i mho i would not vacation...youre pushing your luck to have sex....just sayin...

retiredguy99 profile image
retiredguy99 in reply toBoywonder56

Thanks for the reply.

Magnus1964 profile image
Magnus1964

Your main concern should be your health. I am not a fan "vacations". If something is working stay with it.

retiredguy99 profile image
retiredguy99 in reply toMagnus1964

Thank you.

Magnus1964 profile image
Magnus1964

Thanks for cheer up Nal. I needed that.

retiredguy99 profile image
retiredguy99

Thank you very much!

mrscruffy profile image
mrscruffy

I am afraid of vacation and that is a personal choice. While libido is not like it used to be I know when my wife wants it(walks through the house in lingerie) it is time for tri-mix. Still have a satisfying sex life so I am good

Marshb52 profile image
Marshb52 in reply tomrscruffy

What is tri mix?

mrscruffy profile image
mrscruffy in reply toMarshb52

It is an ED drug that is injected into penis before sex. After Viagra and Cialis failing I went to that. Works every time

MechD profile image
MechD in reply tomrscruffy

Yes works every time and injection is tolerable but penis was a bit sore during sex which was annoying and distracting. Did you have that experience?

mrscruffy profile image
mrscruffy in reply toMechD

Never had any pain while having intercourse, just a pinch when injecting. For us, the best stuff ever

MechD profile image
MechD in reply tomrscruffy

I’m glad it’s working well for you!

dixiedad profile image
dixiedad in reply tomrscruffy

'injected into penis'...whew. I wish I hadn't read that.Oh well, I'm 80 and dixiemom is 77 and we're now just very, very close friends. We're fine with that, but more power to ya'.

😉

Horse12888 profile image
Horse12888 in reply todixiedad

It's psychologically difficult the first time you do it, but it's really not painful.

Tasmanian profile image
Tasmanian in reply toHorse12888

I found trimix self-injection a bit traumatic. I then found a doctor who customised the mix and supplied it in a sterile vial that could be drawn into an insulin syringe and used with an auto injector that greatly reduced the psychological and physical discomfort of self-injection into your penis.

in reply todixiedad

So to summarize, it is when you prick your prick?

JRPnSD profile image
JRPnSD in reply toMarshb52

In my case, the injections stopped working (after many adjustments on the mix) after about a year. No one had an explanation.

Marshb52 profile image
Marshb52 in reply toJRPnSD

Sorry you had to go through all that and it didn’t work 🙁

JRPnSD profile image
JRPnSD in reply toMarshb52

Well...got a year's worth. No regrets. Worked well when it did. Never got a complaint :)

London441 profile image
London441

Agree that you’re not considered a good candidate. But even if you go ahead with it, you should know your testosterone at baseline and factor your age, the duration of the ADT and especially your overall health. Your body fat, strength and fitness play a large role in your ability to recover T.

Marshb52 profile image
Marshb52

What is tri mix?

swwags profile image
swwags in reply toMarshb52

papaverine, phentolamine, and alprostadil. It is injected directly into the penis to gain an erection. Used by people who have nerve damage and viagra is no help

Scout4answers profile image
Scout4answers

7 months into Lupron +Zytiga and still having sex 3-4x / week. Cialis helps though it is not always necessary. Desire for her still strong, desire for sex , well not so much. Your partner may have to initiate and get you aroused, once that happens it is back to pretty much normal.Here is a poem I wrote about it:

COCO vs. LUPRON

Lupron it promises, to take away my desire,

yet Coco continues, to light, up my fire.

.

To measure my pleasures, one must know the measures.

To which that you go, to fulfill all my pleasures.

.

My body lacks T, no question of that,

Now you start most encounters, my libido’s gone flat.

.

You kick start the action,

and soon I gain traction.

.

You apply some warm lotions

Then start soft hand motions.

.

Your use of witchcraft, does always amaze.

Back in the saddle, we are like old days.

.

Even without, the milky wet jaction,

You know that I get, such great satisfaction.

.

I am, as you know, a guy who keeps score:

Lupron has zero,

Coco; two hundred and four....

Dsmejkal88 profile image
Dsmejkal88

My father went off of Lupron and his psa started to rapidly climb and a lymph node and spot on his hip showed up (new). This is just his experience, we are all different and I have zero medical background.

j-o-h-n profile image
j-o-h-n

I get my tri-mix injection at Quest..... the ladies there know how to handle needles and things....

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 03/27/2022 11:26 PM EST

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