Hi Guys. I'm new here. Diagnosed 12/20. One of nine cores was positive : Gleason 7. PSA was 120. Bone mets on spine but nowhere else. Mainly on C7 and L4. No bone pain. Two shots of Firmagon 12/20. Started quarterly shots of Eligard and daily 1200mg abiraterone plus prednisone Jan. 2021.
By July 2021 PSA was undetectable and still is. Fortunately I'm tolerating the drugs very well but the big problem for me is zero sex desire and ability! Can anything be done about that?
Also, I've heard about stopping ADT for a period of time but I'm doing well and I guess I might be afraid to stop. Should I just count my blessings and keep doing what I'm doing? Thanks.
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retiredguy99
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For me, ADT Vacation was a pipe dream. By the time my testosterone was inching up, my PSA was shooting up faster.
But, but, but, did I say but?
This was before I did radiation therapy (RT), so should have planned this ADT vacation some time after RT. So will I try vacation again, yes, if still hormone sensitive, the risk is low...
You pays your money yuse takes yer chances.......the g7 says the cribiform at pathology was not..." aggressive".....but you had mets...did u have pin...to have mets with one core positive....either the doc was a bad shot....or your fn lucky one hit something.......i mho i would not vacation...youre pushing your luck to have sex....just sayin...
I am afraid of vacation and that is a personal choice. While libido is not like it used to be I know when my wife wants it(walks through the house in lingerie) it is time for tri-mix. Still have a satisfying sex life so I am good
'injected into penis'...whew. I wish I hadn't read that.Oh well, I'm 80 and dixiemom is 77 and we're now just very, very close friends. We're fine with that, but more power to ya'.
I found trimix self-injection a bit traumatic. I then found a doctor who customised the mix and supplied it in a sterile vial that could be drawn into an insulin syringe and used with an auto injector that greatly reduced the psychological and physical discomfort of self-injection into your penis.
Agree that you’re not considered a good candidate. But even if you go ahead with it, you should know your testosterone at baseline and factor your age, the duration of the ADT and especially your overall health. Your body fat, strength and fitness play a large role in your ability to recover T.
papaverine, phentolamine, and alprostadil. It is injected directly into the penis to gain an erection. Used by people who have nerve damage and viagra is no help
7 months into Lupron +Zytiga and still having sex 3-4x / week. Cialis helps though it is not always necessary. Desire for her still strong, desire for sex , well not so much. Your partner may have to initiate and get you aroused, once that happens it is back to pretty much normal.Here is a poem I wrote about it:
COCO vs. LUPRON
Lupron it promises, to take away my desire,
yet Coco continues, to light, up my fire.
.
To measure my pleasures, one must know the measures.
To which that you go, to fulfill all my pleasures.
.
My body lacks T, no question of that,
Now you start most encounters, my libido’s gone flat.
My father went off of Lupron and his psa started to rapidly climb and a lymph node and spot on his hip showed up (new). This is just his experience, we are all different and I have zero medical background.
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