prednisone etc: I am on Firmagon Zytiga... - Advanced Prostate...

Advanced Prostate Cancer

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prednisone etc

spencoid2 profile image
6 Replies

I am on Firmagon Zytiga and prednisone. The prescription did not get refilled and i ran out of prednisone. I remember being warned to not stop taking it. I think it has been two days and I feel really awful. Feel freezing cold even though it is not cold and have hot flashes at the same time.

I hope this is just from not taking the prednisone and that the 12 year old stuff i found still works. I think I almost feel better already.

Also wondering how bad this crap can get. My hot flashes are somewhat under control but the other symptoms of castration seem to be getting worse. Today I had such muscle weakness that i had a hard time walking. Muscles did not cooperate. I hope this i just from the lack of prednisone.

Is retaining fluid in feet normal?

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6 Replies
GP24 profile image
GP24

It will probably take weeks until your body reacts to the lack of prednisone. However, you have to take it with Abiraterone to avoid long-term effects.

spencoid2 profile image
spencoid2 in reply toGP24

i was only off it for two days at the most. found some 13 year old stuff that seems to work because i pill has me a lot less awful feeling. refill tomorrow.

Prednisone is a quick refill...go get the refill.

Magnus1964 profile image
Magnus1964

You need to get that prescription refilled as soon as possible.

Tall_Allen profile image
Tall_Allen

Retaining fluid (edema) is from not getting enough prednisone.

tango65 profile image
tango65

You need to check the electrolytes and your blood pressure if you already have fluid retention. No taking prednisone with zytiga leads to fluid retention, edema, sodium retention, hypertension and potassium loss in the urine (hypokalemia). Your muscle weakness could be a symptom of hypokalemia. You need to consult and get the prednisone.

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