Good News! But what about the joints (ankles, knees, elbows)?

[StePeteMN]

Happy Monday, everyone. My pilgrimage to Rochester, Minnesota went well, last week. 656 days post diagnosis my PSA is, again, dropping after a modest post-radiation flair--now down to 0.14 (from the low three digits in April of '18). I'm pleased with the trajectory but I don't think I'll make it to zero by the two-year anniversary or my 53rd birthday. I'm probably in for a long slog on ADT and Zytiga. The radiology report is encouraging..."Decreasing uptake in the recently irradiated RIGHT humeral lesion. Decreasing uptake in the T9 vertebral body metastasis. Numerous other sclerotic skeletal metastases show minimal or no uptake consistent with treatment. Nothing to suggest locally recurrent prostate cancer or regional lymph node metastases." I've tried hard over the last couple of months to eat for quality and am following advice of my MO to get exercise every day, first-thing to mitigate brain fog--I can't afford to be stupid at work! I'm in better shape and trimmer as result and we'll see how fit I can get on Zytiga. This weekend were the American Birkebeiner XC ski races up in northern Wisconsin and the first time in several years I wasn't racing, but I was able to be the Sherpa for everyone else in my family, so there's that.

***One thing that concerns me is joint pain which I thought was from prednisone, but apparently it's more likely from ADT. I hope I'm not aging my joints too much because the exercise keeps me sane. Anyone else who's on Zytiga feeling the joints? Advice? I searched the topic here on HU and see Meloxicam is helpful for some, but is there anything we can do other than treat symptoms? Does chondroitin / glucosamine work?

[noirhole]

5 years in my joints ache like I am 95 I am (59) anagram of my age! Prednisone should help. Wait until you stop taking the steroid. Good Luck.

[gyancey]

I feel your pain. 1 1/2 years on ADT and my joints hurt like hell. Especially the hips. The only relief I get is with opioids but I don't want to use them too often for obvious reasons. It's making excercise difficult but I have to power through it.

Good luck.

[Jimhoy]

Saint Pete

I endured debilitating hip pain through the 2nd 1/2 of my ADT (Eligard). I got it to go away briefly by taking a left over Indomethacin (previous gout med (prior to ADT)) while thinking I had a gout flair up. This med usally took care of gout in a day as it did this time. But this time ALL MY GOINT PAINS WERE GONE TOO! The best I felt in a long time.... started doing projects that I could not do... now I could actually get on the floor AND back up again without help! That was short lived when my PcP would not renew my Rx and switched me to Celebrex!!! Once that happened, all my major joints on the left side only were killing me!!! Right side..... absolutely fine!!!!!

Anyway, moral of the story is that as of starting a QoL vacation, and as my T started to rebound slightly over 6 mo’s, the pains went away again! But ended up with a pinched nerve issue in my neck causing shoulder and arm numbness / pain. Longer story not included!!!! I read that spine compressions or a possibility with ADT but........!!

I can fight through daily workouts with the shoulders now that I have been able to resume after years of couch potato!!!!! Talk about hell but..... got to do it!!!

Jim

[j-o-h-n]

I think I have water on the knee and beer in the joints....

I think my ex-wife is using her voodoo doll again.... lousy bitch....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 02/26/2020 6:48 PM EST

[Dandellis in reply to j-o-h-n]

You are the silliest on this sight, keep up the good laughs!!!

[j-o-h-n in reply to Dandellis]

Thanks Sill-i-est rhymes with Dan-del-l-is . All kidding aside did your twin brother's doctors ever consider "Keytruda" for his lung cancer? It's working on my lung melanoma....

BTW I keep forgetting my twin brother's birthdate..

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 02/26/2020 9:23 PM EST