Update

[Altamontt]

Haven’t posted in awhile. Diagnosed in December 18 with PCa with 6 Mets to bones including sternum, rib and scapular. Started Firmagon with PSA of 14. After one month down to 4.5. Original diagnosis with biopsy showed cancer in 11 of 12 cores. Gleason 4/5. Started chemo, docetaxel, and changed to Lupron. Almost stopped chemo. Side effects were hard. So sob could hardly walk up steps. Bones, especially knees, hurt so bad I I couldn’t walk my dogs for awhile. MO lowered dose after third session. Neutrophils down to 1. Started neulasta and took a Claritin during treatment. WBC, RBC and hemoglobin still low but manageable. After chemo PSA was 0.085. Still on Lupron. Had PET scan with F-18 that showed no ca in prostate or anywhere else. Dr did bone scan that showed improved bone scan with no new lesions. I haven’t seen the scan. That was message nurse called to me. Good news all around! What now? Any comments, suggestions? Thanks.

[Tall_Allen]

How many mets did you have when you started chemo?

[Altamontt in reply to Tall_Allen]

Both iliac crest. Lower right pelvis. Left scapula. Right sixth rib. Mid sternum.

[Tall_Allen in reply to Altamontt]

Great response to chemo. Have you discussed abiraterone?

[Altamontt in reply to Tall_Allen]

Yes. Prior to scans. After the chemo and the lowered PSA we took a three month break with nothing but continuing Lupron. I see MO next month and that will be on the table.

[ellie2211 in reply to Altamontt]

Did your mo give a reason for the break? Lupron only? My dads onc has a similar approach ... Discussed zytiga but decided to wait

[Altamontt in reply to ellie2211]

Yes. Had such a rough time with chemo and good response wanted me to break for those reasons also to to see if PSA remained low.

[Altamontt in reply to ellie2211]

He said that the PSA was low and a break would help me. Went back for PSA in November. It was 0.12. Still on break til February PSA test. MO said would just keep using Lupron til PSA is .02. Then Zytiga.

[6357axbz]

Is the chemo you used Docetaxel? Not sure if from your comments above if you meant chemo and Docetaxel.

[Altamontt in reply to 6357axbz]

Yes. The chemo was docetaxel.

[Collarpurple]

🙏❤️

[Mikeski]

Great response! What now? Enjoy!

[Altamontt in reply to Mikeski]

Not sure. See Mo in couple weeks. Maybe xtandi.

[j-o-h-n]

Good news!!! Keep up the good work....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 10/26/2019 12:26 PM DST

[Altamontt in reply to j-o-h-n]

Thanks!

[j-o-h-n]

FOR YOU:

youtube.com/watch?v=Nm67lQ6...(Not working as expected?)

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 10/26/2019 2:09 PM DST

[Altamontt]

For what it worth, I like it.

[Altamontt]

Update. He said that the PSA was low and a break would help me. Went back for PSA in November. It was 0.12. Still on break til February PSA test. MO said would just keep using Lupron til PSA is .02. Then Zytiga. Anyone else have experience with this situation? I’m feeling great. Little sob and painful joints. But I am 72.

Thanks guys.