I truly appreciate any thoughts on my current situation: I had a prostatectomy seven years ago followed by radiation leading to an undetectable PSA for two years. Then, PSA came back and I went on Lupron, Zytiga and Prednisone for 9 months along with ($2800) PSMA scans at UCLA and in Phoenix and radiation which resulted in my PSA decreasing to .03. Hoping for a two year vacation, unfortunately, I only got a two month reprieve until my PSA reappeared at 0.24...and two months later the PSA was 1.87.
My MO now says that maybe Lupron (and I suppose other meds) should be given again when the PSA is 5.0 or to give me off-label Luekine to increase my white blood cell count.
I am in a quandary and to be honest, scared. Would someone have thoughts regarding my situation? Thank you!!!