Fatique: Good Morning Im currently on... - Advanced Prostate...

Advanced Prostate Cancer

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Fatique

Andrevz profile image
26 Replies

Good Morning

Im currently on Xtandi and Firmagon, PSA down to 0.03..Had Radiation for 7 weeks a while ago.

What advice is there for the daily fatique?

Blessings

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Andrevz profile image
Andrevz
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26 Replies
GP24 profile image
GP24

Ginseng may help:

mayo.edu/research/forefront...

mklc profile image
mklc in reply toGP24

How many milligrams do you take of the ginseng?

GP24 profile image
GP24 in reply tomklc

I had just mild fatigue. The capsules I bought have 500 mg of ginseng. You can take two in the morning and two in the evening resulting in 2000 mg per day. This is the dose Barton used in the trial.

ncbi.nlm.nih.gov/pmc/articl...

mklc profile image
mklc in reply toGP24

Thank you so much. I will give it a go!! Good health to you.

Pleroma profile image
Pleroma in reply tomklc

I am a great fan of Mayo, but those Ginseng tablets did nothing for me.

As mentioned by others, exercise is likely best option for most of us: 20-30 minutes a day.

Magnus1964 profile image
Magnus1964

Fight through the fatigue with exercise. Start slow with brief sessions and build up.

Rocketman1960 profile image
Rocketman1960 in reply toMagnus1964

I agree with Magnus64. We all know the fatigue is coming and why. Push through it. Start slow and build up tolerance.

tom67inMA profile image
tom67inMA

How long was "a while ago"? It can take months to fully recover from chemo or radiation. Exercise helps, and so can stimulate medications. I run and take Bupropion, which is an antidepressant I was on for a decade before diagnosis. It helped with the fatigue I'd get during the winter, and now it helps with cancer-related fatigue.

RyderLake2 profile image
RyderLake2

Take the Xtandi at bedtime.

Andrevz profile image
Andrevz in reply toRyderLake2

Thanks RyderLake2, Can Xtandi be taken with Stilnox at night

RyderLake2 profile image
RyderLake2 in reply toAndrevz

I take Xtandi at night and I have no problem sleeping. Try it without Stilnox. If you still have problems with insomnia (and you need the Stilnox) check with your pharmacist that there isn’t a drug interaction.

I can’t imagine there would be.

Ralph1966 profile image
Ralph1966

American Ginseng 500 mg twice daily helping me beside L-Arginine 1000 mg also twice daily. Can increase Ginseng to 1000 mg twice if needed! I am going through the monthly Firmagon injections, and 10 days post 38 sessions of PB SRT.

Tippler profile image
Tippler

I was told that BIRM might help with fatigue also. For me, concentrated BIRM works.

MontyB profile image
MontyB

In addition to exercise, one of the doctors on my MDA team prescribed Methylphenidate (Ritalin) for me to help with the fatigue. 2.5 MG twice daily...morning and afternoon. It helps. Take care, Monty

EdBar profile image
EdBar in reply toMontyB

Same here, helps fight through some of the cognitive issues caused by ADT too.

Ed

yamobedeh profile image
yamobedeh

After 37 RT sessions, brachytherapy and 10 followup RT sessions to pelvic lymph nodes, and triple blockade ADT, I was so fatigued, that in desperation, I implored my clinic to help me. They, and members here recommended resistance (weight) training and aerobic exercise, as much as I could stand, 3-5 times or more a week. That and the recommended creatine, .5g x2 per day (get the bulk container, not the caps) really helped to alleviate much of the fatigue. Also helped with the cognitive deficits from the intensive ADT. I found that when I least felt up for exercising, it was a signal that I needed to do it....right then. I cycle 15 to 25 miles a day, whenever I can, and I walk 2 to 3 miles when I can. Once you get moving, the resistance to doing it tends to dissipate. This situation is no trivial thing. My fatigue was so noticeable to others, that my pharmacists even asked if i was OK when having scrips filled. Before getting into an exercise routine, I couldn't walk more than a hundred feet without needing to get back home. Do it. Others here may have other suggestions to help. I am better now, after 18 months post RT, and 14 months post ADT. I still use supplements such as 5K to 10K units of vitamin D3, Ginko Biloba, Ginseng, sublingual Vitamin B12 and Vitamin K2, (with a fatty meal to aid absorption) to help with daily energy.

Hope this helps.

Best of luck on your journey with this.

MarkBC profile image
MarkBC

I am fortunate to have been able to retire. When I feel exhausted, I just have a quick nap and then I am fine for a few more hours. I usually have two each day.

Patrick-Turner profile image
Patrick-Turner

My solution to fatigue was to remain busy with work after EBRT + ADT in 2010.

I did not have time to be fatigued, plus I kept up cycling 220km a week - for years after, or 1.4hours average for each day of week. I did not cycle every day, but when I did it was often between 2 and 5 hours. I've had many other drugs and treatments, and am now 72, but I find time to be alert and creative and now cycling about 150km a week.

I always thought I would never get anywhere if I just sat in a chair and did nothing.

Patrick Turner.

larry_dammit profile image
larry_dammit

Make sure to control the pain , I just have to get out and do something ,doesn’t have to be heavy but the more I move the better I feel

Oct18 profile image
Oct18

I had fatigue on Xtandi also so I switched taking it from morning to bedtime and that has helped. Also stay active if possible exercise as much as you can. Whether you just get out and walk or run or bike ride or swim, something that gets your heart rate up and breaks sweat if possible. At least that’s what helps me. And eat as healthy as possible. Best of luck to you!

pilot52 profile image
pilot52

Take it at night...and get active.....wether riding, walking a lot, jogging, paddle boarding, playing pickle ball lifting weights...involve yourself with people who are active...blow up you tv in the day time....come wash and wax my plane....!!!!The stuff is keeping you alive so embrace it and deal with it....Blue Skies....

Break60 profile image
Break60

This may not be you’re case but cancer can cause depression which in turn can cause fatigue . Daily exercise is very helpful for both but I’ve found that duloxetine really works for depression, anxiety and pain.

j-o-h-n profile image
j-o-h-n

Buy a blow up doll..........Takes a lot to blow them up.... I speak from experience...

Good Luck, Good Health and Good Humor.

J-o-h-n Monday 10/07/2019 8:33 PM DST

Break60 profile image
Break60 in reply toj-o-h-n

Still don’t have anything to use on it so what’s the point?

j-o-h-n profile image
j-o-h-n in reply toBreak60

No backtalk.....

Good Luck, Good Health and Good Humor.

J-o-h-n Thursday 10/10/2019 5:19 PM DST

Sam -E has helped me with fatigue and greatly lessened my joint and muscle pain ...I had chronic fatigue syndrome for my first 21/2 years after RT . I hope that you can slip out of the fatigue sooner than I did . Unlike you 8 had tubes out of kidneys and a foley . Be happy that you’re not there... The RT can affect us for years afterwards . I was on double adt also . That’s another contributing factor . My healthy energetic wife constantly got me up and going during the hardest times..left to my accord I could have turned into R.I.P. -Van Winlkle... I still have low energy and minimal stamina and endurance . But at least I came out of the chronic phase . I think the further away that you get from RT the better you should feel . Takes time to recover from the assault .. Best of luck moving forward ..Scott🌵

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