Supplements in layman terms - Advanced Prostate...

Advanced Prostate Cancer

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Supplements in layman terms

Fdccs profile image
51 Replies

Hi guys,

Could someone please help me with the following?

After reading posts here and some of my own reading I am thinking of suggesting, Turmeric, Vit D and Berberine to my husband (he doesn't know it yet!)

Can these be taken as supplement tablets? Sorry I know this has been discussed but I need simple. What strengths should I be looking for? Would any of the above interfere with radiotherapy?

Thanks so much

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Fdccs profile image
Fdccs
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Tall_Allen profile image
Tall_Allen

Read these first:

pcnrv.blogspot.com/2019/04/...

pcnrv.blogspot.com/2018/07/...

Berberine has been suggested to increase radiosensitivity of prostate cancer in mice, but because it has not been studied clinically, no one can tell you if it also increases toxicity:

ncbi.nlm.nih.gov/pmc/articl...

Fdccs profile image
Fdccs in reply toTall_Allen

Thank you for your time, I appreciate it.

I feel like I've had to become a doctor in the last 8 months so it's a steep learning curve!

Tall_Allen profile image
Tall_Allen in reply toFdccs

The hard part is separating high quality information (which we have little of) from low quality information (which is most of what people who don't know any better are fond of posting on sites like this). Anyone can consult Dr Google, but understanding which conclusions are legitimate and which are illegitimate takes a bit more work. Don't take anything without consulting your doctor.

tom67inMA profile image
tom67inMA in reply toTall_Allen

re: "Don't take anything without consulting your doctor", which one? My MO generally refers me to my GP for all non-oncology treatment, and my GP isn't an expert in prostate cancer. This eventually led to my GP recommending selenium which is general advice she gives to all her patients. But, just a few days prior I saw a video (posted here) of a prostate cancer patient conference where the presenting doctor/researcher/whatever specifically recommended against taking excess selenium (excepting people who have a deficiency).

Just venting mainly, but I'm of the opinion that we need to educate ourselves as patients so we can tell the good doctors from the bad ones, and also to fill in the gaps between the MO, the Uro, and the GP.

Tall_Allen profile image
Tall_Allen in reply totom67inMA

If you are having radiation, ask your RO. If you are permanently on ADT or other medicine for PC, or you are trying to manage symptoms of your PC, ask your MO. If it is for a CV issue, ask your cardiologist. If it is for a peeing issue, ask your Uro. If you are just using yourself as a guinea pig and putting random chemicals in your body, don't expect anyone with a medical degree to give you advice - you are on your own and only you are responsible for the consequence.

pilot52 profile image
pilot52 in reply toTall_Allen

Going to Duke and MD Anderson they want to know every supplement I take...I supply this info to them. I would hope your OC would want this information also. These facilities also have nutritional counseling and you would hope they keep up with current science...Just for an example they said what I expected to be a "no" when I ask abut DHEA, so sometimes I throw things out just to see if they are paying attention..you can also easily get vitamin toxicity alone even if you are healthy so just do not keep throwing all of this together...GP's, some have some knowledge, but most seem not to understand vitamin supplementation , and interactions between them , however again I caution one thinking all of these supplements are the key...Good basic nutrition is pretty easy to understand along with guidance for our disease then you must add as big a dose of exercise to the equation...do not excuse this part away....if you have some physical contraindication to the last part post what it is and we can possibly suggest an answer to get you off of your loins...Remember, you have wheel chair athletes on one side of the equation, and people so lazy and fat that they use scooters to tool around the grocery store buying Twinkies...Personally I would never spend money on supplements if it in any way causes a problem on your monthly budget....Blue Skies , a Grounded Sky King

adlerman profile image
adlerman in reply toTall_Allen

Most Doctors know nothing about supplements- asking them about supplements is as bad as asking them about diets. Doctors are in the sick business not the health business. IMO.

pjoshea13 profile image
pjoshea13

Fdccs, You asked for "simple", but others might want more. Skip to "Simple" below.

Turmeric.

There is only 2-6% of curcumin (the active ingredient) in turmeric.

Curcumin.

See:

healthunlocked.com/advanced...

"Relationship and interactions of curcumin with radiation therapy":

ncbi.nlm.nih.gov/pmc/articl...

Vitamin D.

See:

healthunlocked.com/advanced...

Berberine.

Some here use Berberine as an alternative to Metformin. Metformin has a safety record that Berberine lacks.

See:

healthunlocked.com/advanced...

Metformin.

See:

healthunlocked.com/advanced....

"Metformin sensitizes prostate cancer cells to radiation through EGFR/p-DNA-PKCS in vitro and in vivo.":

ncbi.nlm.nih.gov/pubmed/248...

Simple.

What follows is what I use. I'm not suggesting that anyone else do the same.

Curcumin (one daily)

swansonvitamins.com/now-foo...

Vitamin D (one daily) Monitor 25-D levels.

lifeextension.com/Vitamins-...

Metformin (4 x 500 mg in divided dose) Important to slowly work up to the full dose.

-Patrick

Fdccs profile image
Fdccs in reply topjoshea13

Thank you Patrick, I'll take a read.

Really useful to have all in one place

Trecento profile image
Trecento in reply topjoshea13

Patrick, thanks for this. My husband is having blasts to his lower spinal area on 5 consecutive days from Tuesday. Can you give a ‘simple’ on what to avoid - excluding berberine, curcumin and D3 which he already takes please. His integrative health doctor has him also on milk thistle, methylated B1,6,12, beta glucan mushroom complex and Gamma E.

Trecento profile image
Trecento in reply toTrecento

That is to say, he will continue with berberine, curcumin and D3, just interested on whether is’s Advisable to exclude the others for a couple of weeks.

Trecento profile image
Trecento in reply toTrecento

Plus magnesium spray.

pjoshea13 profile image
pjoshea13 in reply toTrecento

I would stick with the milk thistle:

ncbi.nlm.nih.gov/pubmed/265...

but stop the others.

I don't think that "methylated B1,6,12" are appropriate with PCa. Methylation supplements may be useful in cancer prevention, but PCa wants to be methylated. It uses it to silence the tumor suppression genes.

Good luck!

-Patrick

Trecento profile image
Trecento in reply topjoshea13

Thanks very much - will do.

Trecento profile image
Trecento in reply topjoshea13

Patrick, he actually has salivary gland cancer that has been treated with ADT regimens because it is an androgen receptive. However, from Norm’s last test results, which showed new lung mets, our oncologist took him off these deeming them ineffective (his scan also revealed blood clots - another factor signalling that the cancer was no longer ‘under control’). His cancer is a rare one, so there is nothing ‘on the shelf’ so to speak (a carcinoma bit not a SCC form - which seems the focus of all the head and deck cancer studies and clinical trials).

Norm is taking the B vitamin supp on the advice of an integrative health doctor. We generally use prostate cancer information as a sort of guide as to what to take and not to take - my question is: what is your view on methylated B’s for types of cancer other than prostate? Could you direct me to any research that has informed your opinion so that I can pass it on to our specialist. I should add that his B12 levels were very low at one point so that was the reason he began supplementing. The doctor provided the methylated supp, which we then substituted for the B12.

Any pointers much appreciated - recognising that prostate cancer is your particular focus.

pjoshea13 profile image
pjoshea13 in reply toTrecento

As you note, PCa is my focus, but hypermethylation does seem to be a problem in salivary gland cancer.

The subject of epigenetic silencing of tumor suppresor genes was quite new when I was diagnosed. [1] - [4] are early salivary gland cancer studies that might interest you. [5] is a link to PubMed. Paste: salivary gland cancer methylation into the Search area & hit Enter for ~67 hits.

Best, -Patrick

[1] M.D. Anderson - 2006

"We investigated the methylation status and protein expression of four tumor suppressor genes to determine their role in salivary gland tumorigenesis."

"(a) Benign and malignant salivary tumors differed in the frequency and pattern of gene methylation; (b) high-grade carcinomas were significantly methylated compared with low-grade phenotypes; (c) RASSF1 and RARbeta2 were highly methylated in malignant tumors and can be targeted for therapy; and (d) methylation pattern may serve as a diagnostic and biological marker in assessing these tumors."

[2] Japan - 2003

"... These results indicate that inactivation of p14ARF and p16INK4a genes by either homozygous deletion or promoter hypermethylation may be important for the molecular pathogenesis of salivary malignant tumors, and provide clear evidence that epigenetic changes like methylation are related to salivary gland carcinogenesis."

[3] Japan - 2004

"14-3-3 sigma:, a target gene of the p53 tumour suppressor protein, has been shown to regulate the cell cycle at the G2/M checkpoint. Recent studies have demonstrated that 14-3-3 sigma is downregulated by hypermethylation of the CpG island in several types of cancer. In this study, we investigated the expression and methylation status of 14-3-3 sigma in human salivary gland adenoid cystic carcinoma (ACC) and mucoepidermoid carcinoma (MEC)."

"In this study, we examined the expression of 14-3-3 σ in the most common human SGCs, ACC and MEC. The findings obtained from the present series of experiments are as follows. First, expression of 14-3-3 σ was frequently lost in ACC, but not in MEC. Second, downregulation of 14-3-3 σ in ACC was not due to the alteration of the p53 tumour suppressor protein, but rather to hypermethylation of the CpG islands of 14-3-3 σ gene. Third, a cultured-ACC cell line, ACCY, also showed downregulation of 14-3-3 σ and hypermethylation of the CpG islands of 14-3-3 σ gene. Fourth, 14-3-3 σ was not induced by irradiation in ACCY, and ACCY was very sensitive to the irradiation. These results suggest that downregulation of 14-3-3 σ might be a critical event not only for the development of salivary gland ACC but also for the radiosensitivity of ACC cells."

[4] Japan - 2005

"These findings indicate that epigenetic silencing of tumour suppressor genes via promoter hypermethylation might be crucial for salivary gland carcinogenesis, particularly in the RB1 gene. Thus epigenetic events including methylation and acetylation as well as genetic alterations may have important contributions."

-Patrick

[1] ncbi.nlm.nih.gov/pubmed/171...

[2] ncbi.nlm.nih.gov/pubmed/126...

[3] ncbi.nlm.nih.gov/pmc/articl...

[4] ncbi.nlm.nih.gov/pubmed/156...

[5] ncbi.nlm.nih.gov/pubmed

Trecento profile image
Trecento in reply topjoshea13

Many thanks Patrick, much appreciated - I can see that this will be very useful, and certainly we will not resume the methylated B vitamins.

LearnAll profile image
LearnAll

My supplements: curcumin 2250 mg a day (naturewise) , Vit D3 5000 I u every other day,

Red Yeast rice 1800 mg a day , Quercetin with bromelain 800/165 mg a day. cholestar-RF 2 caps a day. Berberine HCL 1800 mg a day.Completely plant based diet except yogurt.

My Hb A1C is 5.8 and total cholesterol 165, trigycerides 85. Body weight 143 BMI=22.5

I don't take prescription meds for lipids and sugar.

de-luke profile image
de-luke in reply toLearnAll

Just a heads up, my girlfriend had a very bad reaction to red yeast rice. Bad back pain and strong fatiuge. She was taking it as an altrernative to statins.

LearnAll profile image
LearnAll in reply tode-luke

I never had side effects with red yeast rice. Lipitor (statin) caused leg muscle pain and cramps...that's why I changed to red yeast rice.

de-luke profile image
de-luke in reply toLearnAll

I took red yeast rice my self and had no reactions, good or bad.

GranPaSmurf profile image
GranPaSmurf in reply tode-luke

I've had great results using Red Yeast Rice with no side effects. I stopped when my total Cholesterol reached my goal of <150.

CantChoose profile image
CantChoose

Why is everyone supplementing with turmeric instead of just cooking with it?

There's a lovely tea you can make with turmeric root: turmeric, ginger, lemongrass, honey, steep and drink straight or mix with coconut milk. Turmeric also grates like a root vegetable into stews or soups.

NPfisherman profile image
NPfisherman in reply toCantChoose

I do both....cook and supplement--all good...

Fish

Karmaji profile image
Karmaji in reply toCantChoose

Take curcumin with food. Not as tablet...

Same take a glass of red wine....not as pill..

pilot52 profile image
pilot52 in reply toKarmaji

If you learn to take your red wine in pill form you can drink at the Waffle House!

Tall_Allen profile image
Tall_Allen

Paranoia isn't a useful stance for medical decision making. I'm all for skepticism, but not cynicism.

cesanon profile image
cesanon

There are lots of different types of tumeric. Search around this forum for recommendations.

And consider metformin as a substitute for tumeric.

j-o-h-n profile image
j-o-h-n in reply tocesanon

As per your request: "stop reading my posts please. Thanks" I did not read your post.

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 07/09/2019 6:48 PM DST

paulparry profile image
paulparry

What symptoms need which supplements?

Hot flashes I use Sage, Lycopene is good for prostate but tomato skins are same.

Any vitamins that supplement deficiency eg C or D are ok.

Turmeric is being credited for killing cancer cells - not sure if proven.

Cannabis oil was being touted - the one with THC but not sure if proven.

Its horses for courses really. Same as the treatment. 1 works for 1 person but may not for another.

Irun profile image
Irun

Hi I am from the UK so some things may be not called the same. Firstly I would say that generally USA is a few years ahead of the UK in cancer treatment so thanks for everyone’s posts as it gives me an interesting discussion with my onco.

I am T4 n1m1a start of osteopenia, PSA 342 on diagnosis now 0.14 , been on abiraterone for over 3 years, PSA lowest ever and constant for 12 months.

Supplements

Vitamin D

Baby aspirin

Pomi-t

Calcichew

Turmeric + black pepper (I read that you need to have cumin with something for it to be absorbed in the body)

Boron

Magnesium

Vit B12 (I am mainly vegan)

Vit K2

Glucosamine sulphate

I also subscribe to Chinese medicine practices so take 32 herbs twice a day and have acupuncture.

My diet is generally plant based but do eat meat/ dairy for about 3 of my 21 meals a week plus fish for another 3. (So not really vegan but quite low non plant) lots of broccoli, blueberry, pomegranate juice.

I also go to the gym every day and ru; ultra marathons. I was 49 on diagnosis now 54.

I have no idea if any of the above works but I am still here when most o& my diagnosed peers are not anymore or are not doing well so I won’t stop as it’s clearly not hurting me!

I a,sways say, if you said to a healthy human /doc would these supplements hurt they would say no. Will exercise , less meat and dairy and mor vegetables general,y help your health , hell yes so why not do that as a metastatic cancer patient?

Have a great day

Kev

Fdccs profile image
Fdccs in reply toIrun

Thanks Kev, I'm in the UK too (in fact we've spoken on the UK site) so it's good to know what you can get here.

Where do you get your supplements? Bit wary on internet

Irun profile image
Irun in reply toFdccs

I get my supplements from all over, Oxford research (I think) for my tumeric, boots for a few of the other bits, some online but I read the reviews and go for ones with 4.5 stars and 300+ reviews

abmicro profile image
abmicro in reply toIrun

Warning: dont take herbal stuff with abiraterone (Zytiga). Affects liver--Jaundice. I got Jaundice in 2012 with a med with the same herbal warning. Had to stay off all meds for 6 months, and then took UROSODIOL to help my liver. Worked back into my meds slowly.

Patrick-Turner profile image
Patrick-Turner

Before 2014, while Psa was < 1.0 while on ADT after diagnosis 2009,

I read huge amounts online including many stories posted by men or their relatives about Pca and stuff you could eat to either slow Pca down or give a cure. Nothing anyone said has ever been proven to work against Pca.

Dennis Hill and Rick Simpson suggested sativa cannabis cured Pca. Others said apricot kernels containing amygdalin would do the same. Dr John Holt in Perth said radio waves at just the right Frequency killed cancer. An Italian doctor suggested baking soda pumped into arteries up-stream to cancers killed the cancer. Other have talked about potions made up by native American tribes ppl and so on and on and on. But not one man has ever proved anything he ate or drank ever made any change to his rising Psa.

There are dozens of claims, but no medical proof anyone got the slightest benefit.

I ate a lot of apricot kernels, and they did nothing. I had a friend who grew some nice natural wild sativa with low THC and high CBD and I followed Dennis Hill's advice that if you had a daily dose of oil produced by such pot, enough to get stoned, then that'd cure Pca. I only needed about 2mG, about enough to cover the head of a pin, and after taking this nightly for 8 months, and being stoned I found my Psa continued up without the slightest dip downward which indicates the pot oil was working.

Unfortunately, ppl who get diagnosed with Pca often think they could control the outcome of what is a bunch of prostate cells that grow uncontrollably due to DNA defects. I have not see anyone ever have any such control.

So therefore I have had to get used to the idea I have to live with Pca and buy whatever does work to slow Pca progression or kill Pca cells. So since 2010 when my treatment began my Psa has been up and down like a yo-yo while trying all the usual ADT plus other expensive add-on drugs. Then Chemo failed. I've had 4 x Lu177 shots since last Nov and Psa 3 weeks ago was 1.6, and I have no idea if it has continued to reduce, or is already increasing again.

I am 72, and might make the 10year survival time since diagnosis. But I think my Pca will spring back up like a horrible weed and maybe will be mutated so nothing known will stop its progress. If that happens I move to experimental therapy and usually that does not work.

Men need to calm down, accepts the reality they t they have been dealt an "imperfect hand of cards" buy what treatment they can, and enjoy the life they have left. In my western democratic and developed country I am lucky to still be alive, because I estimate my life is better than about 5 billion on the planet where life expectancy is much lower than the 80+ for men in Australia.

I know men who will never get Pca, but their life has other illnesses or conditions that will take them out, so really, a man needs to be relaxed about reaching a day when he begins to completely un-live.

I suggest men be nice as possible for as long as possible to all those around them before the day comes.

Meanwhile, before my exit day arrives, maybe some new therapy becomes available to halt my Pca. Nobody really knows.

I have a hip joint that's giving me so much trouble its stopped me cycling 200km a week like I used to before last February. So this lack of exercise will accelerate the work done by "Time the Dismantler" . I'm still living independently, but maybe not for too much longer.

But I am not depressed, and each day is another day, and its no good complaining because nobody really wants to listen.

I am not doing much exercise now, and an now taking enzalutamide, a drug that slows metabolism and then makes weight gain inevitable unless drastic calorie reduction is undertaken, and I that's what I've done, maybe I am eating

1,200 calories a day yet weight stays constant. I do have will power to stay on a diet. I eat mainly raw vegetables, and carb intake daily is 4 table spoons of rolled oats for brekky, 2 slices of bread in salad sandwich at lunch, bowl of salad and 2 fried eggs at night. I use a small amount of olive oil. I drink a lot of green tea and have 2 large cappuccinos at my café with lunch. Every one around me is eating far more, and a lot of junk, but not me. I can barely keep weight at 85Kg, but BMI = 25,

resting HR is about 55, waist < 95cm, and my blood tests show little that is wrong. There are plenty of ppl who make to 80+ and beyond who do little exercise, but because they eat right, and never too much, they miss out getting many other problems.

All the best to everyone,

Patrick Turner.

Balsam01 profile image
Balsam01 in reply toPatrick-Turner

This is a really good post!

Patrick-Turner profile image
Patrick-Turner in reply toBalsam01

Hi to all who are using non-mainstream anti cancer remedies. Many of these folk healing ideas are benign, and cannot have any more than a placebo effect. They enable ppl to feel better about themselves even when the progress of cancer continues unaffected. And so often ppl are in denial about cancer progress, and maybe think things would be far worse without taking some supplement or other.

But the other thing to remember is that a lot of potions derived from nature such as herbs or plants will be broken down by digestion soon after eating them. Or else you'd find that you'd need to eat 20Kg or drink 30Litres, and be prepared for horrendous side effects. Many cling to the idea that Big Government has banned "folk remedies" because they were acting on behalf of Big Pharma. For example, once upon a time there were clinics in US giving Leatrile. This is the active ingredient of bitter almonds or apple seeds et all and it is a molecule called amygdalin, and it consists of a cyanide molecule combined with glucose and benaldrezide. The later two molecules are harmless, its the cyanide that is bitter. Nature designed many seeds to be bitter so animals would not chew them up, but spit them out, and where the apple seed landed, maybe a an apple tree sprang up.

Anyway, amygdalin is easily removed from bitter almond kernels which is a common food stuff sold to make some food better by adding a bitter and thus interesting taste different to the sweet+fat preference of so many ppl that makes them fat.

Anyway, the amygdalin is probably broken down by digestion, so when I ate 30 kernels a day, then maybe little of the 1mg of amygdalin per kernel was getting into my blood stream. I had no way of measuring how much was in my blood stream and nobody online ever said what was scientifically correct about how much amygdalin got into blood but I ate the kernels anyway. I counted the kernels in a 1Kg pack costing $40 from a health food store, about 1,700. I read UK analysis of kernels and their conclusion was that more than 4 kernels per day was toxic, but I found I had no side effects.

But at the "leatrile clinics" they had the extracted pure amygdalin and it was injected into veins in huge doses, 2,000mg, and such doses would be impossible to get by eating the almond kernels.

Well, theory was that because all cancer cells need carbohydrate to live,

the amygdalin would enter a cancer cell from blood stream because the glucose allowed it to enter. Then cancer cell would break down the glucose and discover the cyanide that then killed the cancer cell. So amygdalin was supposed to act like a natural Trojan Horse that could destroy cancer, but unfortunately, healthy cells also absorbed amygdalin, and were affected badly.

In effect, Leatrile was early chemo therapy.

So for one reason or another, treatment by amygdalin was banned in USA,

although when I read about this in 2012 the articles online said some Leatrile clinics were operating in Mexico, claiming a 15% cure rate, from mainly end-stagers from US who had come to the point where nothing works to hold back the cancer progress, and these ppl were often in very bad shape from both their cancer and the previous treatment side effects.

Unfortunately, there has never been any evidence supporting the 15% cure rate. Many claims get made, but often its by people with a vested interest, ie, they sell the kernels, so of course they say it cures cancer, even when it does not. The cannabis industry is rife with false claims about what cannabis can do. But I know two men who are hopeless case schizophrenics because they smoked far too much pot once they got into their teens.

THC is largely poisonous, and a terrible thing. And pot grown in grow houses is high THC yield which the victims adore because of the high.

But low yield pot with no THC and high CBD seems to help many with mental health problems such as epilepsy. But despite much research so far, cancer cures are not possible with CBD. But many cannabis growers say cannabis does nothing but good for everyone, its natural medicine that's been used for maybe 5,000 years.

Modern science can disprove old beliefs. The Earth is not flat, but is a ball, orbiting the Sun. Could you ever have trusted a "physician", ie a doctor, in 1719? No way, because the man was abundantly ignorant, a quack, a fraud, and likely to hasten your death.

Having a priest by your bedside when things got really grim might have done more good, but then the idea was that ppl didn't die, they had souls and they lived on after they died, thus the pain of dying was a bit relieved, but I myself find that idea also unsupported by any evidence. I doubt we live on after death. Exactly where are all these living souls? If they are there, they are very snobbish to the living ppl because not one has ever spoken to me about how good heaven is.

So afaiac, I have to accept my ending while I am alive. When this ending looms up in front of us, it causes anxiety, and we find ourselves like the captain of a ship who sees the iceberg, and tries to steer around it. We know what happens when he can't avoid hitting the iceberg, but that is what happens to very many ppl each day because they often don't get a chance to change course, in the case of a heart attack. So cancer usually gives time to change course, sail on until we see another iceberg, but eventually, we can't move, too much ice, no life, so we should be grateful

for anyone who sees us out with some goody-feely drugs that make us high and numb and we begin to un-live in the sleep that follows. This process

is common, not to be feared. Nobody gets to go back to do a life better than you did before. The disquiet about the life you led can finally be left behind. Next day, you sure will not worry about anything.

I've seen quite a few die from cancer, and often they did not get time to resolve the resolvable issues of life. Who ever does that? Its natural to fear an end, but it happens to be natural to end.

But away from these thoughts I feel that I might get some doc to fix my sore and I might enjoy getting back onto a bicycle again, at least for awhile, and my Pca seems to have been reduced so much by expensive nuclide radiation that docs might not write me off, and thus give a little bit more that would make an old man happy.

But without the available mainstream medicine, I'd have died by 2013. No natural therapy or magic potion was ever going to help me.

Its a beautiful sunny morning here, after -2C last night.

Lunch at my local café and reading newspapers will be very pleasant, maybe I talk to friends if any show up. Waitresses are like angels.

"Is there anything more you want Patrick" they ask, and I don't have time to turn the clock back to when I was 25, and reply with "what are you doing next weekend?"

But then being 25 was a bit overrated. Usually the waitress might be surly, or married, or her boyfriend sitting at another table was ready to kill me if I smiled at his woman a little too much. We don't get all we want in life, and certainly not afterwards. For last 10 years, I grew to be glad about not getting all things I wanted at 25. I see the unhappy wrecks around me who seemed to get too much.

Try to stay cheerful, no matter what, OK.

Patrick Turner.

pilot52 profile image
pilot52 in reply toPatrick-Turner

I was 50 and playing golf frequently with a gentleman who was a retired radiologist. He was in great physical shape and was late 60's...He used to remark that when he lost his libido he was set free.....I now understand his comment...blue skies

Patrick-Turner profile image
Patrick-Turner in reply topilot52

Yeah, libido leads to young men saying angrily, "Ya can't live with women but ya can't live without them" and without ever spelling it out, women knew this all along, despite the torrent of words that are spoken by some women, much of which completely confuses males, there is one sentence that you never ever spoken by anyone in any language "Jus you lie down 'ere luvvy, it won't cost yer anyfink"

Once a man realises the unspoken has more meaning than the spoken, he just has to work out if the angel of his desire is affordable. If there's not enough dough, she becomes a devil. Then he has to watch out during the divorce because after that she might become good at one thing, becoming the housekeeper.

Luckily I never ever let things get that far, and once the anger tantrums and tear drops fell I only wanted to discuss greener pastures, and left a door open. I refused to keep anyone caged, if that's how they thought marriage was. And in 1970s and 1980s I met so many women not able to commit to themselves, me, or us, and after awhile they just had to go off travelling. I was a contract builder running his own business, and had to operate with a fixed address, and be known well to local ppl who I worked for to extend their houses. I found the best ppl to work for were married couples who held hands while talking to me about what they wanted in a contract and the details of the job. Meanwhile, home life for me was quite bleak, always wanting something that never seemed to occur properly. I shared my house with 1 or 2 others though, and that was a lot of fun in early years after 1980, when I was 33, a bit old for a lot of ladies who had not yet tried anything serious with anyone. Often they would never have anyone. I met many with two kids out of a marriage and I wasn't able to fund them.

I've been in my house for last 43 years, and have no plans to leave and

I'll bet some ladies I knew have moved countless times. I had a sister who moved house 9 times in 9 years. I Understood women and myself well enough to not go without all love. In the media you see many examples of heroic efforts of love of two ppl to stay together, but any heroics on my part were never to work in what must have been a hum-drum world where so many around me feared ever loving anyone.

I'm glad to not have anything to do with any women except the nurses and waitresses I meet, they all seem like angels.

A young single lady was interviewed on radio recently where she complained their was terrible shortage of young men at her Catholic church to meet, and of course nobody was able to explain to her that most men would see her as a dangerous trap, because if any many dated her he'd find that almost overnight a man would be reduced to a bag of semen which paid the bills of having kids and maybe there'd not really be much to enjoy. The wage paid to most young ppl is now abysmally low, while house prices have gone sky high, so getting married really has become a form of slavery for many, so no wonder the un-talked about pleasure of masturbation is the substitute for the level of sex with women I could expect when I was young, and when my parents were young.

Its no wonder the birthrates are so low. Only a few are really cut out to marry successfully, and maybe I was not, but that didn't stop me working and saving and settling down in a house, ie, proceeding with building that huge symbol of anti-single behaviour, and I saw that as giving myself freedom, but the ladies of my youth seemed to think otherwise.

I could have written a book titled "50 reasons why I didn't get laid last night" but then realised I'd never sell a copy because what do ppl want? They wanna know how to get laid more often. I just tried to not be my own enemy, and be honest, but that seemed nowhere near enough, and years flitted past, and when Pca treatment completely un-manned me it didn't matter, there were no opportunities to flourish as a man can with a wife, and of course at 63, it was at least 10 years after the time when nearly all ladies pause from men, because of hormonal changes, or the bitterness of divorces etc, etc, etc.

I've ended up in a very simply life now, and am not going to live this phase for much longer. It'll do, and I don't chase what I cannot have.

Its a cool dull day here, but I have some work in shed to do,

then go out for lunch. It will be a pleasant day.

Always look on the bright side.

Patrick Turner.

Sandy752 profile image
Sandy752 in reply toPatrick-Turner

This is a positive post. I've printed it and plan to read it every now and then especially if I start feeling a little sorry for themselves. Thanks Patrick.

ucladany profile image
ucladany in reply toPatrick-Turner

Thank you my Brother. I enjoyed your post. God bless you, you are in my prayers.

GranPaSmurf profile image
GranPaSmurf in reply toPatrick-Turner

Thanks Patrick. This is a great roadmap / tutorial.

Fitzbruce1 profile image
Fitzbruce1

Thanks for the nice post. Congratulations on your attitude, your diet dedication n of course your unusually long survival with this wretched disease!

de-luke profile image
de-luke

Sloan has a comprehinsive info base about herbs and suplements mskcc.org/cancer-care/diagn...

Also come as a phone app.

I take Pomi-T which has a study showing it slows PSA progression.

ncbi.nlm.nih.gov/pmc/articl...

No cures here, but perhaps some slowing down of the PCa creap.

You can get Pomi-T on amazon cheaper if you find the deal where they sell 6 bottles at a time.

RonnyBaby profile image
RonnyBaby

I'd certainly take a LOT of high quality curcumin (longa extract) during and after treatment.

My post Rad results were / are impressive.

I also used some full spectrum hybrid medical cannabis (in tincture form).

I do recall being asked to avoid foods and supplements that were strong anti-oxidants, due to the fact that we are trying to deal with free radicals that are activated during treatment.

Fdccs profile image
Fdccs in reply toRonnyBaby

Thanks Ronny, this is all so confusing!

We had the same information/advice re avoiding antioxidants. I presume that none of these are.

I might have to call the nurse but they'll probably be cynical

Racybud profile image
Racybud

I would also suggest going to a reputable store for supplements as they vary greatly. We like Natural Grocers. The employees are well trained and the products are high quality.

j-o-h-n profile image
j-o-h-n

First of all don't eat plastic..... and then remember:

Chocolate chip ice cream (two scoops)

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 07/08/2019 8:17 PM DST

pilot52 profile image
pilot52 in reply toj-o-h-n

Holy Crapola ! You mean you are supposed to take the wrapping off before you consume it..??? I figured the plastic kept it fresh so it would be fresh all the way thru!!! Blue Skies...still grounded but waiting on my letter to comply....GSK

j-o-h-n profile image
j-o-h-n in reply topilot52

OMG you were eating the wrappings? You were only supposed to eat the aluminum foil wrappings... NO wonder you were grounded SKY KING (lack of aluminum). "Happy Skies to you... Until we meet again" (Roy and Trigger.)

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 07/09/2019 12:37 PM DST

Crmp55 profile image
Crmp55

A definite is vitamin D

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