Title says it all. I've been using BIRM appx 4 months and Concentrated(7x) BIRM for almost the last two. I take 2.5 mg of Concentrate 3 times daily after meals.
My energy is better, focus is better, and PSA and pet scans have shown some improvement.
Just want to know how many others are there.
Thanks,
John
good morning Great John and how are you?
apologies for my ignorance, but what is BIRM?
Best regards, Mike
For best answer search BIRM on this site. Also search Gator Blood. Then google "BIrm cancer" to see NIH and other articles about it.
What you'll see is amazing.
John
I just started using the 7X at 2.5 ml twice a day. I waited for my PSA test 3 months after chemo. I have another PSA in June so I really can’t report much yet but hoping for a drop at holding steady.
good luck, can't wait to hear....about test results. How are you feeling overall since starting?
Only been about a week, and to be honest I missed a few doses. ADT at its best> I'll keep you posted on it.
I (and several other people) reported feeling MUCH better the day or two after starting. Of course...they, like me were on Lupron and Xtandi...and any good feeling is such a blessing after you start on that slippery slope! (LOL)
Started about a month ago as per you & Krats' laudatory comments. Regained vitality within days, which "eased" after about 3 weeks. Went to 1ooo mg lipospheric C on empty stomach upon awakening, then BIRM after 10 minutes. Works 'til noon. Can't ingest it after noon; keeps me awake too late. On my 2d bottle of normal dose; switching to 7x when the Groshong port heals and I can sweat.
THANKS mucho. If not for your initial enthusiastic report, I might never have tried it, and regardless of whether it's snake oil, it's an effective weapon viz. increased energy.
Crusher
I feel thrilled to be just a small part in bringing you any sense of relef from the oppressive side effects we suffer. I'm praying for even more for us all in slowing down the growth of the demon for us all as well.
Today is blood work day and oncologist visit. Can't wait to see what the numbers say!
gJohn
Hey Kmack...I just read (or re-read) your bio.
you sound like me. I started out Gleason 6...had radiation...psa didn't go down enough ...
then did H.I.F.U (it was just approved by Medicare, but NOT covered by Insurance)
Then PSA still didn't go down enough...
Then Axumin Pet scan came out and was approved and I ran and was one of the first at U of Miami Sylvester.
Alas, they didn't find any in my prostate..so the H.I.F.U. was successful...(I guess) but it seems the "seeds" had already been planted...it was in bones of groin area and also lymph nodes in Abdomen and groin area....so
then I did Chemo...and then Provenge....and simultaneously started Xtandi.
What a rollercoaster...off the slippery slope.
I was worried I was having my less than stellar results because I wasn't at a big name hospital...but I see, even with big names...some of us just have the outcomes that are our destiny.
I'm banking on the BIRM for now...
good luck,
gJohn
Just noticed your comment about “big name hospitals”. You probably already know but if not Moffitt Cancer Center in Tampa is a top notch cancer hospital, #8 in the nation per US News and World Reports. I got as far as making an appointment with them (I too live in Florida) before I received a satisfactory treatment plan (clinical trial) from MD Anderson. They make it very easy to get a second opinion appointment and check to make sure your insurance will cover.
John. How expensive is concentrated Birm and how much do you get per?
... I was "prescribed" by Dr. Cevallos (the originator of BIRM) to take 2.5 mg times daily of the concentrated (7x) BIRM)....that when you do the math takes two bottles(4 ounce bottles) per month at appx 125.00 per bottle. Therefore, it's cost (for me) is about 250.00 ish
hope that helps,
gJohn
Thx John
Hey,
Hope you're doing ok GJ.
Does anyone know how to get this in the UK? Seems big brother has restricted this here which is another frustration. Amazon won't ship here
My husband started it when he began treatment because of my research on it. He is on monthly Lupron injections since July. His is Gleason 3 +4=7. Some lymph node involvement. His PSA high was 74 at the beginning of Lupron. It is .38 as of Feb 25. On Jan 24 it was .34 and on Dec 14 it was .43. I am wondering of course if the .04 rise in PSA is the beginning of resistance. He is choosing radiation instead of surgery although we haven’t started down that rode yet. He hasn’t been more tired, just hot flashes, memory issues big time and his belly gaining weight and muscle loss. His work is crazy busy and he doesn’t exercise too often. We started at 2.5 ml of BIRM 3x a day as prescribed for 4 months then lowered it to 2x a day and a 2ml dose because of all our medical and supplements and now eating organic no dairy, infrequently eating grass fed and finished beef, lots of fish, no chicken or eggs, diet. I wonder what would happen if I stopped the BIRM to see, but I’m hesitant to do so.
He is 58 and we have been married 28 years.
and THAT is the rub. When doing fairly well...one doesn't really want to rock the boat.
Good Luck on the journey,
gjohn
p.s. I just read your post about his skin issues on Lupron...I've been on for appx 2 years and my skin is looking like an old man's...it's dry, cracked and crazed..and I scratch very easily...and scabs don't heal up quickly. (I'm 62, but always had very good skin) I think it must be par for the course...I use Cetaphil lotion whenever I'm going to get a few minutes away from my puppy...since he likes to lick lotions and I'm afraid for him. That does seem to help.
j.
Me too, my skin is very dry and flakey, cracked and crazed is a good description. All the same side effects, I bruise easily, scratch easily and take longer to heal. I use Aquaphor, that seems to help quite a bit.
When I had radiation burns from head and neck cancer at MD Anderson they suggested Emu oil...it seems to be the most effective stuff I use...even keeps your nail beds looking good...a little pricy but worth it....the bruising is frequent on the arms which is annoying ....it clears up rapidly if you get break from the meds but then returns when you get hit again with Lupron and whatever....
My husband has been taking birm for 1,5 months. Also 3X 2,5 mg the concentrated form.
Till now no idea if it helps, and he takes so many supplements...
He is feeling great, but was also before... that's because he did not begin standard therapy yet, that will come very soon probably (ADT + radiation), so hope BIRM will help against side effects.
I'll add my positive vibes that it helps with the side effects for him too. ADT (which is actually chemical castration) is JUST as bad as what it is sounds like. Gotta remember to keep walking and doing some weight lifting....every day!
Thanks! 1 year since diagnosis, he did a lot (gym, yoga, supplements, diet, cannabis, birm, MCP), cancer did not progress, but it is T3b N1 M1, so ....
Imagine that he did 3 PSMA PET CT and 2 MRI and 1 bone biopsy and they still don't know if he has bone mets....It is important to know that even PSMA PET CT can give false positives. Anyway, since low burden, we will try with radiotherapy and ADT probably.
He does not have any symptoms, that's great, but gives him less motivation to go through ADT and I am worried because of heart issues.
Very happy for your BIRM results!!!! Natural things can help a LOT.
I've been taking the low-octane stuff for about 2 months, 4 or 5 cc twice a day. I THINK it has helped me feel less creaky while on ADT, but it's not a controlled experiment. Can't be certain. No idea if it's helping with the PCa; happy to say I'm still one of The Undetectables.
Not sure what that is ???
According to this link, here is the ingredient of BIRM.
BIRM ingredients:
-BIRM is an aqueous extract of dried roots of an Ecuadorian medicinal plant,
<EM>Kalanchoi gastonis-bonnieri.</EM> BIRM is extensively used in Western
Hemisphere mainly as Herbal immune booster, as by the manufacturer (Ecua-BIRM
Inc., Quito, EC and on their website [<A href="ecuabirm.com/" target="_blank"
ref="reftype=extlink&article-id=5356655&issue-id=288984&journal-id=1558&FROM=Article%7CBody&TO=External%7CLink%7CURI"
data-ga-action="click_feat_suppl">WWW.EcuaBIRM.Com</A>].
Kalanchoi is the genus and there are about 125 species and here are 3 common species:
1- gastonis-bonniert
2-Bryophyllum diagremontianum
3-Pinnata
warincancer.blogspot.com/20...
Here is the link for Kalanchoi Pinnata tropilab.com/kalanpinnatati...
I'm go glad to hear you're feeling like the effects are beneficial. We think so too. My husband (almost 66) added BIRM to his protocol in late January. His only other current conventional treatment is (post RP) Firmagon injections. He just had his 7th a week ago. His PSA for two consecutive months prior to initiating BIRM was 0.02. His most recent which would have been about six weeks after starting BIRM was 0.01. He takes a lot of other supplements so it is impossible to attribute that (or anything else) to any one thing, but he feels really good. He is energetic. He sleeps well. His constipation issues which have plagued him are dramatically better. He takes 2.5ml of the x7 concentrated BIRM twice a day. We plan to continue. (He was diagnosed in March 2018, PSA 34, with Gleason 9 after RP, negative bone scan, but no sensitive scans were done. PSA only down to 17 six weeks after RP. PSA 24 in August and Firmagon started. Sept PSA = 0.67, Oct PSA = 0.12, Nov/Dec PSA 0.03, Jan and Feb PSA 0.02, March PSA 0.01 (official dx/staging was P23bMoNo / No "known metastasis")
sounds like he's doing well. I haven't had any issues with diarrhea or constipation during my whole cancer journey....it's been five years now. Radiation, chemo, HIFU, Provenge, Lupron(of course) and Xtandi. I feel like now that I have started the Xtandi that the BIRM must be helping with those potential things. I was at the Oncologist today...all my bloodwork (including PSA) is not back yet...but my Alkaline Phosphatase (which was already normal range) went even lower...from 75 down to 65.
asked about a big holiday trip in August...and the doctor said wait and talk with my main oncologist next month....to make sure he thinks it will be okay for me to be "away" for 5 or 6 weeks. I now have to have blood work and see him every 4 weeks.
All the best,
gJohn
That’s a great alkaline phosphatase number! You seem to be doing great! Fingers crossed you’ll be able to take your holiday and for a good PSA result!
My husband was struggling with constipation for a few years prior to diagnosis. We think his prostate was contributing. When he finally had his RP his prostate was pretty big and had caused complete urinary retention. His prostate was 88 grams and he was having to catheterize for a couple of months till he had his surgery.
I’m confident the supplements are helping him feel better. I don’t know what’s doing it, and it’s probably multifactorial, but this month he’s suffering a lot less from fatigue and brain fog. His energy level is great.
Warmest regards to you!
Hi, John. I'm 51 and on 2.5 ml regular-strength BIRM twice a day since late December. At that time I knew my PSA was rising (1.24 then) and my simple ADT honeymoon (Lupron + Bicalutamide) was going to be over. That's when I dropped Bicalutamide, joined this forum, saw one of your posts on the NIH study, read the study, and immediately began BIRM as a supplement. I soon felt better, but I also think it likely that dropping Bical helped.
It is difficult to tell the direct effects. Since I only test PSA every other month and I also started Zytiga in the interim, I did not have a period of BIRM-only to really judge. My PSA dropped to 0.76, but if it is Zytiga+BIRM or Zytiga-only (I would be surprised if the small amount of BIRM I take as a supplement would make that drop! I wish....!)
I can only say that I wouldn't do without it. I live in the Denver, Colorado area. Although winters here are comparatively mild for a 4-season state (a fair amount of sun), they are still cold and I've been achy and miserable during my first two winters of this journey (granted, that first winter I was on chemo and recovering from radiotherapy).
Using BIRM has seemingly improved my energy, lessened my aches, and allowed me to recover quickly from the winter cold everyone wanted to give me. And that routine illness didn't seem as intense.
I would have liked the luxury to try BIRM prior to significant changes in my treatment, but I'm not going try now! Thanks, and keep the posts going! - Joe M.
Wow..Joe, it sounds like you are doing great. Right now Denver sounds great to me. I'm sick of our 12 month summers in Ft. Lauderdale. Hope you keep heading in such a good direction. So happy to have played a part in helping you find BIRM.
gJohn.
Well, I can’t complain, GJ (well, except for the obvious....)...! 
And be careful what you wish for on location....I think there is something very healing about water, and the ocean especially....I miss them. Go ahead and visit everywhere (I highly recommend the desert!), but don’t discount home! - Joe M.
I am taking BIRM concentrate since March last year. Same dosis
You eat that stuff and your energy has to go up....I incorporate a lot of those foods and do Athletic Greens while adding white hickory bark and anything else I feel like it in the way of apples , bananas, strawberries, blueberries and use an Odwalla protein drink as my base....my energy is off the charts...lift and jog...the other day got an engine start forgot to brake the ole bird and had to run down the taxiway to catch her!!!! (humor)
Sky King
As I told before, I am taking BIRM since February 28, 2018. I have a great PSA chart, but I ,cannot post here, so I will try to explain part of my medical history.
I was diagnosticated with Prostate cancer in June 2013. I started with Lupron and Casodex. After three months the doctor suspended the Casodex and I got 56 session of radiation. My PSA was 0.1 until 2015 when started going up very slow. In December 2015 I started feeling back pain after doing lifting at the gym, but though was a "pinched nerve". In June 2016 I had a bone scan showed prostate cancer metastasis to the bones, mostly my spine, left femur, ribs.
I went back to Lupron in June 12, 2017 (PSA 12.5). By October 2, 2017 my PSA was 1.6, two weeks after raised to 2.24. This day I started chemotherapy with Taxotere six sessions every three weeks. When I finished my last session with Taxotere in January 26, 2018 my PSA was 8.2.
After the chemo I did not have any treatment until February 28, 2018 when I started to take BIRM 2.5 ml three times a day with food (as recommended by Dr. Edwin Cevallos). At that moment my PSA was 12.92.
My treatment with Zitiga only started March 14, 2018 when my PSA already dropped to 2.36. Since that, I am on Zytiga 1 gr/day, Lupron every three months, Exgeva every four weeks and the BIRM concentrate three times a day 2.5 ml.
The last MRI (January 2019) did not find any lesion in my organs, including my prostate. The last bone scan (January did not find any new lesions in my bones and a lesser contrast in some bones.
I have the Cell Search (R) Circulating Tumor Cells Test every four weeks and never found cancer cells in the blood stream. I just have a GUARDAN 360 test (which is like a liquid biopsy), but I will have the results next April 8.
I am feeling OK, not tired as I was when taking chemo. I have lost a lot of muscles because no testosterone, but I try to do some physical work ,although I recognize I should go back to the gym.
BIRM is an anticancer herbal formulation from Ecuador. Previous study established its antitumor and antimetastatic activity agains prostate cancer models........
BIRM
BIRM
Question for BIRM users...any effect on platelet count?
SRT: To BIRM or not to BIRM
