They told me I'd no make it this long, maybe 5 years if I did everything they told me to do. That being unacceptable I decided not to do everything they told me to do.
I started Lupron back in 2011 after surgery. Post surgical tests were all great, but PSA never came down under 66. They could not explain it.
They told me I had to take Lupron every 3 months, I did my homework and told the oncologist that I'd prefer to do intermittent as-needed Lupron. The first treatment took the PSA down to .03 after 3 months. Instead of getting another shot I let it go and went with bi-monthly PSA tests. It took a year for it to recover back to 6 or so.
Doing the research I found that at PSA=12 the chances of progression to lymph nodes and bones was under 2% so my decision was do the Lupron torture only when it recovered back to 12 or more. So far that has been a stable 14 month interval.
After 8 years it is still working. I have no idea for how much longer, but I am trying to help it out.
I am doing medical cannabis daily, maintaining ultra-high levels of Vitamin D3 the last test was 112.
Also I am taking 5-Lox inhibitor, tocotreninols (vitamin E to prevent tumor angiogenisis) as well as DIM, DAC and a strict ketogenic diet to deny the little bastards of needed sugar.
I hate the annual Lupron Torture, but have found that heavy intensive workouts help mitigate much of the bad feelings such as insomnia, fatigue, weight gain, etc.
Oddly I feel better, stronger and healthier now than I did before the diagnosis!
I work hard on lower body exercise like squats with the intention of strengthening the bones ion my hips and legs to make it harder for them to find a home.
They found a node in my right pelvic lymph node 2 years ago. I doubled down on my natural therapies and added boron to neutralize the worst effects of the PSA - it is an enzyme that erodes the protein coat on the bone cells opening up a place for them to take up residence.
The next scan showed the node had disappeared.
I know one of these days the Lupron Torture will stop being effective so hopefully, I can get some insight here. I am interested in BAT, but don't qualify. Failing that I am going to try IV Vitamin C therapy - caveat - you MUST take IP6 to chelate excess iron for the C to work against the cancer. The cells create a micro-environment that neutralizes C's ability to generate H2O2 to kill the cancer cells.
I will post my results,
Best to everyone here. My prayers are with you all.
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It seems to have slowed the doubling time between Lupron shots, I chart my PSA recovery on a spreadsheet and I can see the effect. Whether the keto is doing it or the combination of everything is I am afraid to stop any one thing for that reason so I am doing it all.
I have another home in the Philippines and when I go there it is almost impossible to do Keto for 4-6 weeks but I keep up with with the rest.The curve gets steeper (in a bad way) when I eat more rice. (I am Danish not Filipino, my wife is Filipina.) So yeah the carb restriction definitely helps.
a lot of veggies mainly, avocados, nuts, cheese in moderation, eggs, MCT oil and some shakes, mainly Primal style shakes with low carb mixed in almond milk.
Brocolli, Cauliflower roasted in ghee is great, cauliflower mashed 'potatoes' and cauliflower rice, zuccini soup wild caught salmon, grass fed beef in very limited quantities. Also okra by the bushel.
Did you have metastasis and where? Your PSA was huge but I'd like more info....Congratulations on 9 years and your strategy...Best of luck--may your strategy work forever...
Thanks. I have tried a lot over the years but the 3:1 tincture seems to work best. If it starts to fail I am planning to fall back on RSO (Rick Simpson Oil) They say it works best on solid tumors, they cannot seem to find anything solid in me so far, hopefully what I am hitting it with is preventing it from agglomerating into one
I just got diagnosed at PSA = 289, Gleason =8 and a spot on my ribs and pelvis. I just got my first [1x each] 3 months Lupron shot yesterday and take Casodex for 19 more days. I've had no strong side effects yet. I've gone to a vegetarian keto diet and green tea. How do I learn how to administer cannabis? [is it CBD oil?] Since I have it in the bone, I am particularly interested in what you were saying about Boron as well as where I can read about natural therapies. This is all brand new. Yesterday, my health system in CA proposed either Zytiga or chemo for 6, 3-week cycles. I have not made a choice yet. I'm about to go to UCSF in next two weeks to get independent opinion. I'd like to know all about where to read and get counsel on natural therapies. Thanks.
The first thing you need to do is get the sugar out of your diet and that included carbs to the greatest extent practical. If you can try intermittent fasting as well (Look it up on mercola). It won't kill it or at least it hasn't mine yet but it puts it under metabolic stress and makes it hard for the cells to thrive. Vitamin E is a potent anti-angiogenesis treatment and actually works better than many of the drugs, jusy you have to get the best quality, thej standard drugstore stuff is worthless. LEF has a good one, bt there are others out there.
A baby aspirin 3x a day is a potent 5-Lox inhibitor.
For me I am doing it all, and I double down after the Lupron when they are weak.
I can tell the difference in the keto.
I chart my PSA's on a spreadsheet to track recovery time and I can see the curve flattening out, but still I am frustrated that it does eventually recover,
The Lupron as much as I hate it seems to b doing the job, I am long past the time when it was not supposed to work anymore so I a assuming my multiprong approach is being helpful in that regard, but you never really know.
I used commercial tincture from Colorado at first. Now I make my own. I had to take the scientific approach so I invested in an infusion machine and T-Check to tell me the strength.
I infuse organic coconut oil with commercially cannabis, it however had low CBD concentration so I add CBD oil to the results.
The oil I use has 5mg for drop. So I get the concentration of THC from the TCheck and shoot for 3:1 CBD to THC.
Honestly I have no idea what the effect of that is.
I am using the Shock and Awe philosophy. Hit it with EVERYTHING.
I mean everything including meditation.
I guess if I really was a scientist I'd do things one at a time to see, but I think each does something, not everything.
Cannabis by itself hasn't killed it, neither has the Lupron or the C or the D or the 5-lox or the pomegranate or the lycopene or the zinc or and so on.
My hope is all together will control it and so far, knock on wood it seems to working, just not killing it off.
I got a 2nd opinion from a group called "Best Doctors" they said they would have expected me to be gone already.
One of the questions I asked regarded bipolar androgen. My T levels rise fast and max out at around 600 usually by 2 months after the Lupron wears off. Tbe doctor told me that he thinks one of the reasons I am doing so well is the cyclical ADP is simulating BAT, going from 6 T level to 600 inside of 2 months.
Maybe, but I cannot "qualify" for BAT because the Lupron still works.
Good info on natural treatments is scarce I'm afraid, but Mercola has some good info and Bill Sardi has a few god articles in Vitamin C with IP6 therapy
Dear Alex Paulson, I have reread your post with great interest and It raises a big questions for me.
In June, 2018, my PSA was ~100 (average of two labs). It continued to rise during the next few months during which I water fasted for 20 days and, when eating, followed a ketogenic diet with my glucose/ketone typically <1. I felt very very good, but in face of increasing PSA I had a biopsy (Gleason 9), started on Casodex and a month later, with PSA now 33, switched to Lupron and a vegetarian keto diet (MCT/Olive oil, avocados, nuts and multiple daily mushrooms, whole fruits and vegetables, etc.).
I am a 76 year old Canadian expat living in Mexico and I have no health insurance so every treatment has to be assessed in terms of cost/“benefit.” My Mexican urologist suggested that an orchiectomy would be cheaper and prior to your post I was leaning towards that and even considering a “do it yourself” branding party. But your post raises the interesting possibly of keeping my nuts and simultaneously lowering my medication costs.
I would be most interested in answers to the question: To cut or not to cut?
I have been telling people as far as I am concerned cannabis has worked for me. It might not work for you. Surgery July 2009 T3b with numerous tumors including one of 20mm dia. Nothing but cannabis oil since. Last PSA <.006. I have been joking with people, testicles in one hand cannabinoids and terpenes in the other.
I have been making my own cannabis oil from low quality Mexican leaf. I decarboxilate at 240 F and infuse in coconut oil. I used to take suppositories during the day and dose of oil at night. Recently abandoned suppositories in light of report [extractcrafter.com/2017/05/...]. Wish I could report same good results as you, but I am hanging in there with my daily oil which dfeinitely improves urine stream and reduces frequency and helps me sleep well.
They gave me that option right away and I rejected it just as fast. Aside from not liking to cut off body parts in general, I felt it as a temporary solution as the cancer will adapt to low T levels then it is all for nothing.
I have unusually high T for my age - 600-800 and according to my 2nd opinion doctor the cycling from lupron induced ultra low T to very high T is a form of BAT and seems to be having that effect, as I am on the Lupron way longer than they said it was supposed to be effective.
BAT is what I plan to do once the Lupron stops working.
You’re right to consider BAT as it takes your intermittency theories to their logical conclusion...imo...right cross followed by left uppercut....please keep us abreast
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Gleason 9 localized to the prostate cancer
Dad's advanced Gleason 9 PCa
Aggressive form of prostate cancer PSA 11.8 and Gleason score 9.
gleason 9?
High Gleason low PSA - quit ADT? 
