Reaching the final destiny on my life... - Advanced Prostate...

Advanced Prostate Cancer

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Reaching the final destiny on my life's journey

bboby profile image
20 Replies

I exhausted all the drugs , number of years ago, including few clinical trials. Last few years I have been living on home made Lipo vitamin C and supplements. I was on restrict diet for a while. Cancer spreading to lymph nodes. No longer able to walk. Second Chemo consisted of mixing number of the Chemo drugs, PSA still rising. Can not use bathroom close to a week. Lived over seven years with Castration Resistance Prostate Cancer ( CSPC) and pain. Running out of options. Started refusing treatments. I put up a good fight, losing it now. Looking for hospice or other short ways out. No joy left to continue the fight for.

Bob

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bboby profile image
bboby
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20 Replies
Schwah profile image
Schwah

We all hope to know when our time to stop fighting has arrived. It seems that time has arrived for you. Hospice is a wonderful asset and there is no reason you should live with pain. They should be able to bring you comfort. I pray that you have loved ones around you and that you find peace and comfort.

Schwah.

strummer profile image
strummer

So sorry, please contact Hospice so they can help you. Peace to you.

YostConner profile image
YostConner

Hospice was a gift for my father and our family. It sounds like you have fought hard. My thoughts and hopes for peace are with you.

savingdaddy profile image
savingdaddy

How old are you?

Im so sorry youre in so much pain. Did you ever try xtandi?

bboby profile image
bboby

Nalakrats

Thanks for suggestions . No , I have not. Last I heard BAT still on clinical trials in US.

Can you please reply with the NCT number for the completed BAT, you are referring to.

This one (NCT03522064) in Australia still recruiting.

Thanks Bob

NPfisherman profile image
NPfisherman

So sorry to hear this...there is a time to fight and a time to quit.... have you had gene mapping of your cancer??...there may be one of the immunotherapy drugs that is a match for you... God bless you, brother....since I am part Irish.... May the roof over your head be always strong. And may you be in heaven half an hour before the devil knows you're dead.

Take care,

Fish

redbank profile image
redbank

peace be with you sir …..

Thanks so much for your post. While it is very difficult to hear your story, know that you are helping others here on this forum. God bless.

The toughest of decisions and I can only hope to have your bravery when it is my time to decide to stop treatment. Peace to you.

Darryl profile image
DarrylPartner

You have us, all, here, for you.

George71 profile image
George71

Not so fast bbobby !!! you still have options... BAT is an excellent option as Nalakrats mentioned -- also, see Dr Bob Leibowitz's video

compassionateoncology.org/v...

Some of Dr. Bob's patients have lived decades after being in you condition.

He does high dose testosterone very successfully. And, there are newly approved options apalutamide (ERLEADA) --- I would also contact my OC and get gene tested for mutations which you almost surely have.

Bebby1 profile image
Bebby1

You’re courage brings a tear to my eye

Seek out comfort

Holds those you love close... they too love you

My prayers are with you

dadeb profile image
dadeb

Sorry to hear this news. It takes bravery to fight and even more to be done. I will pray for you on this journey.

shueswim profile image
shueswim

My prayers are with you brother.

j-o-h-n profile image
j-o-h-n

WTF you just joined our group a month ago.... you can't quit on us now. I know it's easy for me to say but fight your ass off. bboby----->fist bump<-----J-o-h-n

J-o-h-n Wednesday 01/31/2019 6:46 PM EST

God Bless you bboby.. We all will lay down our arms at some point.. in this we all are equal.. No more suffering or pain. Light a torch for the rest of us along the way. Peace

MelaniePaul profile image
MelaniePaul

It sounds like you feel that your time to end the fight and surrender into what is has come. This is a very personal decision but one that each and everyone has to make on their own unfortunately. I hope you have loved ones around you who will support you on your final journey. Hospice is great and there is absolutely no reason why you or anyone should live in more pain than absolutely necessary. Keep posting to this forum if you like and let us know how you are getting on.

Derektwright profile image
Derektwright

So very sorry. I’ll pray for peace and comfort.

ucladany profile image
ucladany

Praying for you my Brother. Please look into the suggestion by Nalakrats.

FortyMile profile image
FortyMile

I can only hope I have your strength should I end up on the same path. Like you I'll fight it as long as I can, but I to want to go in peace when the time comes. All the best, I hope you have lot of friends and family to comfort you.

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