I am 64, was diagnosed with prostate cancer on July 3, 2018.
Had bad experience with the HMO assigned urologist. Thank God for his nurse. As we walked out of the office she handed me my LabCorp biopsy results. I went home and began researching my results and became very alarmed. I realized that I was dealing with a very aggressive form of cancer - Gleason 8 and PSA of 69. The urologist never told any of that to us.
Made decision to get into MD Anderson as soon as possible. Took about a month to get insurance approval. We live in SoCal and had to get Cigna approved for Texas.
Was assigned to the famous, or with some patients, the infamous, oncologist that goes by a single letter in last name.
First appointment was on Tuesday. Numerous tests were scheduled for rest of week and I was scheduled to return for appointment the following Tuesday.
However on Thursday, I underwent a full body bone scan. Was at lunch when phone started blowing up to get back to onconologist office. Once we arrived we were told the bone scan revealed the the cancer has metastasized into my bones and the lymph nodes in my hips. Sternum, rib cage, spine and other places showed up as well as hip lymph nodes
That same day I received hormone therapy shots - 2 - into my abdomen In September I started on Lupron and Zytiga with prednisone.
Now in my fourth month. My PSA which had increased from 69 to 90 by the time we got to MDA is currently under 1. I am expecting bone and CT scan in either January or February.
I am cautiously optimistic but also realize most of you have a wealth of more information about your case and your meds. I only know what I can find from sites like this one. My doctor doesn’t really go into much details or talk about what the future may hold
Thanks to all of you for sharing your stories. Your info is of great assistance to me