Starting Provenge tomorrow

Good luck. I had very few side effects with it.

my only side effect was exhaustion for a few hours after the blood draw and also after the blood infusion(the kind of exhaustion that for me required passing out in bed for about 5 or 6 hours)....but other than that....it was easy. Hope things go well!

I don't know what it's going to be like for you but I wish you well. This is a good place to whine. There is nowhere that everybody understands as well as here.

And it's not whining it's airing out ones emotions

Since both arms have IV’s in them you can’t turn the pages of a book or type on your iPhone or laptop. I brought my headphones and binge watched bodyguard on Netflix. It made the time go by quickly. I had not side effects. Wishing the same for you.

Good luck Rusty. I’m praying that it will work well and go easy. One question tho. I’ve not gotten to Provence (yet) but why no showers ?

Schwah

Good luck! We are praying for you! 🍀 🙏

James

Good luck!

Is your local treatment center doing the procedure or is one of the major cancer centers doing it? Did you have to "qualify" to be accepted for treatment ??

Rode zytiga for close to three years. Went to .07 then rode it up to 990 PSA. Stopped when scan showed progression. Wanted xtandi but Medonc said no because of cross resistance. Only 10% chance to work. I convinced her to prescribe xtandi. Brought psa down to 5. Still on it for one and a half years. I feel Provenge made it work. Never had chemo, nearing nineth year from diagnosis. Alkaline phos 44.

Six months

Does anyone know if you can be approved to take Provenge before castrate resistant and before ADT ? with just raising PSA?

if u haven't even treated your psa and go to the PROVENGE thats wrong in my opinion. i started with a biopsy first then went into the lupron shot/eliguard waited after the 6 month waiting ,psa started up didn't like the side effects of surgery then i did 35 days of radiation then for 10years after all the pills including zytiga which brought my psa down to 5.0 and couldn't get zytiga any more then i went to PROVENGE. i had a port put in not in my arm but by the collar bone then i found out later could have had bath, or shower. the biggest problem is when its being taken out 2 1/2 hours being still and when put back in 1/2 put back in till later its just trying to be quiet and that's not me. 6 wks of this. i had no side effects at all. remember it doesn't lower your psa all that much what it does is some lowering but its to build up ones immune system.

Good luck man. Keep fighting!

Provenge was a piece of cake, except for the three hours of no arm movement and History channel re-runs. I did feel a little exhausted after the first infusion, but blame that on the Benadyrl I was given. Opted out of the allergy meds the next two times! Zytiga on the other hand kicks my butt some days. Good luck!

You will be getting fluids going back into your hand to replace what they take out it's no problem just boring. For all 4 hours of the collection you will get aquainted with the technicians. The only problem for me was with no hands free I had to go -my wife had to help me pee. They just pull curtains and give you a bottle.

After the process that day we went out to dinner at DiAmigos. Hope everything goes well for you. So far I've had 2 years of lower psa and still going. I'm g9 with multiple distant mets.

Larry E

Easy peasy. Get a really good set of headphones a decent music player (I'm an audiophile...) sit back, close your eyes and experience every note. Assistants will help with volume knobs etc if needed. I feel asleep once or twice. Results? 7 years of surviving S4 g10.

First collection is done.

The Hickman TriFusion catheter placement was easy enough (for me). It's not as gross as I expected. It made the collection nice and easy. It started to ooze blood part way through but the nurses leaped into action and applied pressure and changed the dressing. It's been fine since.

A visiting nurse is coming to the house today to change the dressing and show us how to do the daily flush.

Nothing really hurts. Overall: easier than I feared.

I had RALP in 2008. Gleason 8. Stage T2a. IMRT in 2009 when PCa recurred. Started ADT in 2011 when PCA recurred. I had Provenge in 2014. Stopped ADT in 2016. PSA now holding at <0.006. I also had a port and had no side effects. Good Luck......

to RustyDakota.... Remember "Rust never sleeps".....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/03/2018 11:44 AM EDT

Rusty,

Due for my second draw on Monday. Side effects were minimal except for fatigue. Wishing you the best.

Jack

Best wishes!

I had six weeks of Provenge, every other week, for nodes in my lungs. The nodes shrank and are now stable. The only thing I didn't like is that tube sticking out of my chest. I was never so happy as when it was removed.

Very best of luck to you

Had my first re-infusion yesterday.

Got chills half way through, but kept going. They stopped when the infusion was done. Also got Lupron and Zometa. I was very tired when it was all done. Couldn't wait to get home and crawl into bed.

Felt tired but OK for the rest of the day. Didn't sleep well last night. Mild headache and dry mouth. Felt lousy this morning. Threw up once and immediately started feeling better. I'm pretty much OK now.

When's the next one? Bring it on!