I was just reading a post and all the replies....and it reminded me of a personal anecdote I want to share.
I had learned that my neighbor's brother-in-law had had prostate cancer and had only done radiation so far in his "journey". I asked him about it when we were alone and asked if he'd like to talk about it. He described the impotence, the pain...the constant peeing. He was not a happy camper....describing himself as broken.
Later, his wife had come out and she said... "we're just so happy my husband has been so lucky. He's had no side effects and everything works so great. We are blessed".
hmmm. What people will tell you in "confidence" is often not what they "advertise".
I didn't die from the Provenge treatments...but they were horrible. From the first insertion of the two LARGE needles and being strapped down in a chair for almost 3 hours unable to move. Just that alone felt like some kind of torture I wouldn't wish on my worst enemy. When the needles were removed and bandaged and I bounced out...the nurses said I had done GREAT, really better than almost anyone they ever had...as she tried to help me get up...and I danced away to the bathroom by myself. Two hours later I was in fetal position in my bed at home and slept (like in a coma) for 3 hours. This happened every time the blood was taken. I had two hours before it hit...where we would go out to a restaurant for my favorite food...but I knew I had to be home within the 2 hours.
On the days they did the infusion back into me...I got chills and they had to stop a couple of times and they kept warm blankets on me. I was shaking uncontrollably from these chills that they said were "life threatening". I left the place...came home and had a 3 hour coma-like sleep and felt better before bedtime. Was still a little "not myself" the next day, but okay.
All three "draws" and all three "infusions" were about the same....In my wildest dreams I, knowing what they are doing to my body and my metabolism, can NOT imagine someone having "NO" side effects.
I would describe them as "doable" because I knew it was just 3 of each and it was over. I would not say it was a "picnic". I know everyone is different, but I think more importantly...some people just have to be a "good little soldier" and not complain. I didn't complain, but I refuse to sugar coat the actual "feelings" I felt.