Educate Yourself Before Treatment

[William123Cooper123]

Discuss to Know What Is Happening

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The morning I got the first Lupron implant, depot injection ... the doctor warned me that it’d make me tired ... nothing more? (so all the other side-effects were just in my mind?). One day later and from then on, I knew my life was destroyed, and all the crying didn’t help one bit.

After bending over to get the injection in my ass, and pulling up my pants, the nurse handed me the insert, information sheet that came along with the Lupron Kit. And she said for me to read it ... first page headline title on the sheet:

“Lupron and Sex Offenders.” Then more: “As a registered sex offender, the court in which your case was reviewed indicated that you can only be released into the community while being compliant to regular Lupron Depot injections.”

What?

(I knew absolutely nothing about ADT, let alone Lupron.)

What in the hell ... ???

As I was turning to page three ready to pass out ... “Oops,” the nurse says, “Gave you the wrong information sheet.” And was handed the one, “Lupton and Prostate Cancer.” Plus a coupon for calcium and Vitamin D and K. Didn't even know what that was necessary for?

From then on, every three months: Lupron (had prostatectomy, lymph nodes removed, etc.) And the subsequent Lupron side-effects have become progressively severe in years 5, 6, and 7 on Lupron. And I keep asking: “Can it get much worse?” Stupid question.

Thank God that I’m hooked-up with Pain Management ... the narcotics prescriptions not only help to eliminate ... to stopping the pain, but being a drug (opioids), my mind and emotions are in control to some degree (at least for a few hours each day).

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Smile!

At least I’m still alive!

Yea, with 2 lesions in bones, 3 on the liver, and 1 on adrenal gland ... devastating fatigue, excruciating bone pain, depressed as hell, and my whole body out of wack from it all ... lead the way by the Lupron. Smile, at least I’m still alive ... well, so is the mold on the bread in my kitchen.

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(Disclaimer: I am fully aware that each individual has a different experience and reaction to any of the cancer treatments.) — at City of Savannah.

[Dayatatime]

Yeah, it sucks and the struggle is very real. I actually had doctors tell me it's what they use on sex offenders. Believe me when I say I have thought about that more than once, it's not the best thing a doctor can say. It made me feel like I was put on that level and none of us deserve that. We didn't ask for this shit. The effects of the treatment for this disease are beyond brutal to a man and remember your not alone. Stay strong my friend

Ron

[William123Cooper123]

Boy, you are right! But how could I react when I was totally deviststed and mentally numb. Drifting floating.

[Hidden]

That goes double for radiation and surgery.

[elvismlv123]

when you have to get a shot to take a shot its not fun either. I had zoladex in the stomach once per month for 18 months. I had no known mets or surgery or radiation.

I probably knew it was medical castration. After all if you take a drug to repress testosterone production you will suffer. Please note that Lloyd Ney was the individual who brought Lupron into our country. Please look him up. Hes gone now most likely but he has an online group you should join.

I had a job during this period of my life and I sufferd minimally from my treatment. That was 14 years ago and now I am somewhat normal. My T is about 300 but I have ED and minimal libido but I can do sex a little here and there. As you age out sex becomes less relevant....no matter what you do.

I did the Leibowitz protocol ...the shot,5mg of Finasteride,3x5omg of Casodex daily for 13 months. My PSA was .005. At Dx 4.7.

[j-o-h-n]

To William123Cooper123:

In the good old days "my wife used to call me a sex offender". And you know what? What?

"I really was offended".

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 10/26/2018 5:46 PM EDT