Prostate Cancer 367 PSA

[Ldtyson]

Being treated at Stanford. Prescribed bicalumide, Lupron and Zytiga.

I've been told that they cannot cure me but maybe give me more time on earth. I have aggressive prostate cancer that has metastisized to the bones. Any ideas would be appreciated.

[TommyTV]

My cancer wasn’t too aggressive, but PSA @dx was 571. The Lupron (Zoladex in the U.K.) and Zytiga works extremely well. I posted a chart a few weeks ago.

I’m nearly 7 years since dx. Current PSA is immeasurable.

You need Prednisone with Zytiga. Note that it doesn’t suit everyone, as it can seriously affect liver function. Side effects need combating with exercise, as muscle wastage can be an issue.

Good luck with this regime.

[Ldtyson in reply to TommyTV]

Thanks for the input. I'll be rechecked in September. Hope the liver function is normal.

[Tjc1]

Hi, you'll get more than some time. You most likely have a very long life ahead of you, though it will be much different which is what we call the new normal.

[Ldtyson in reply to Tjc1]

I sure hope you're right. Stanford didn't seem to have much confidence in me. I have followed highly nutritional diet and lost 85 pounds to help me through this. The cancer drugs are hard to get use to. I'm also using sodium chlorite I found on the internet. It's suppose to assist the good cells by oxigenating them to help kill the cancer cells. Thanks for the post.

[efsculpt]

I seem to be running across articles that suggest radiation to the mets, even though advanced cancer, is a good idea. Ask them about radiation to mets.

I left Stanford because they wanted to give me Lupron only, even though I had seminal vesicle invasion, 11 out of 12 cores positive with some tertiary 5 cells. Told me I had "Intermediate" PC. So, your treatment addition of Zytiga is a good thing.

Mark Scholz et al-( Prostate Oncology Specialists- Marina Del Rey) feels that aggressive PC requires aggressive treatment. They recommend adding Docetaxel (4 treatments) to the Lupron/Zytiga. You might want to read his book- "The Key to Prostate Cancer: 30 Experts Explain 15 Stages of Prostate Cancer" (Amazon). Compassionate Oncology (in Los Angeles) , Dr Eshaghian, also is open to this approach.

Good Luck,

Craig

[Schwah]

I too went to Scholz and did his triple cocktail regimen and I’m at .02 and holding. Early tho so the jury is out but they liked the idea of all three early since all the recent clinical trials indicated most of these drugs work best given early and in combination with other drugs

Schwah

[leo2634]

I was given Zytiga,Prednisone,Eligard injection, and Xgeva for bone Mets as First line of treatments. PSA was14.7 and one month later undetectable.

I am now six months into it

Be mentally prepared for side effects which can be a major lifestyle changes hot flashes, and E.D. to name a few both of which I've been able to tolerate and overcome. I wouldn't worry about the longevity thing too much you will be here for a long time. My suggestion would be find a good MO you can trust, do your research ,and keep a positive attitude cancer hates that.

Never give up never surrender. Leo

[Fitzbruce1 in reply to leo2634]

Leo- I have very similar numbers to you with lots of bone Mets. I am only on Lupron, zytiga n predizone. How are your bone Mets doing w your regimen? I am only 6 weeks into this nightmare.

[leo2634 in reply to Fitzbruce1]

I'm also on Xgeva for help with bone Mets. Remember don't give up yes it's a nightmare but you can live a long life with the proper care and research. Look to our Brothers on this site there is a wealth of knowledge and information here.

Just knowing we all share the monster brings me to grips with it.

The bone Mets I have give me some pain but tolerable. If you have a lot of pain look into radiation too.

[Fitzbruce1 in reply to leo2634]

Thanks for the reply. I see my oncologist next Monday n I will definitely bring up the Xgeva. I am doing a lot of diet n exercise work. Also having Curcumin intravenously. Overloading on supplements too. This site has been more helpful to me than any doctor has been, as far as options n thinking outside the box.

[leo2634 in reply to Fitzbruce1]

I don't take anything that my oncologist hasn't okayed first.

[larry_dammit]

😢 yep. Stage 4 with bone Mets, currently on Xtandi,eligard and Xgeva. Doctor has said the same thing, at this time no cure for prostate cancer but should last a little longer. 2 years and counting Fight the good Fight

[lincolnj8]

I'm in the same boat as you. Diagnosed 8 months ago at Christmas. Stage 4 advance PC. In the bones, lymph nodes etc. PSA was at 800. Hospitalized because I didn't feel or look good. 4 pints of blood, B-12 shots daily, Blood was in the 6's, should have been in 12's. MO has me on zytiga, prednisone and Lupron. Get a monthly b-12 shot and an infusion (protects the bones). Get the Lupron every 3 months. Now almost normal on all numbers. The MO is super pleased. The bones are producing good blood again. I'm not on the bicalumide. MO toyed with the idea. PSA is under 1 now for 4 months. So far so good. Keep your spirits up. I've really learned to enjoy the simple things in life, revaluated what's important in life. Never was sick with anything till this and I plan to be around for years. What's encouraging is the fact that this is a slow cancer, very slow. They are making new discoveries all the time. Because of the slow nature of this, it may make it an easier target for the new meds coming out. Just saying. Listen to your MO. He's the pro. Good luck...

[Arrayscout]

I had a couple of treatments at Stanford. MO lead was/is Dr Srinivas. Your disease is serious enough that you might want to consider second opinion at UCSF if any concern re treatment protocol.

Also Support group hosted at El Camino hospital is excellent.

[Ldtyson in reply to Arrayscout]

I live in Reno and have contacted MD Anderson re: dx. They would treat same as Stanford. Going to a men's prostate cancer support group in Reno. One person in our group has gone to UCSF to see Dr Peter Carrol. Similar treatment to me. I just keep remembering that their plaque says practitioner. I was told by an Oncology nurse at Anderson that all the major research hospitals share their info. Very incestuous.

[Arrayscout in reply to Ldtyson]

Sounds like you are really well informed. Good luck. The support groups provide some great insight as well that are helpful with some of the side affects of treatment. 👍🙏

[cesanon]

"I have aggressive prostate cancer that has metastisized to the bones. Any ideas would be appreciated."

I think you will learn a lot here that will help you with your treatment decisions.

What do you mean by "aggressive prostate cancer" has it ceased to respond to Androgen Deprivation Therapy?

[Ldtyson in reply to cesanon]

That's all they have told me so far. Next appt. Mid Sept.