I'm still going strong!

[NiallMcC]

Hi everyone,

I though a positive note might help. I was diagnosed Oct 2013, PSA 620. Two of 12 biopsy cores cancerous. Gleasons, 3 and 4. 4 and 4. Widespread bony metastases to spinal column, ribcage, pelvis. Smaller lesions in humerus and femur and skull. After a few weeks on Casodex, changed to Abiraterone, Goserlin (Zoladex). I have also had Radium 223. PSA fell initially to 0 then has risen slowly. Last reading 22. Most recent scans show no organ or soft tissue involvement. My consultant says that I am doing remarkably well. I will be 69 in June 2018.

What's my secret? Of course this might just be for me but this is what I think.

Number 1. An absolute must. Vigorous exercise. I try to to about 16k (10 miles) per day.

Number 2. Virtually no dairy. I eat cheese about 3 or 4 days a year as a treat. That's it!

Number 3. Very high fruit & Veg diet, practically no red meat, except as an occasional treat. Fish & Chicken allowed.

Number 4. Take supplements that include, Lycosine, Pomegranate, Broccoli, Green tea, Ginger root, Garlic and incorporate these foods into your cooking.

Number 5. Don't despair and Enjoy life! You will die eventually, but Hey! so will everyone else.

Get jogging and if you can't do that swim and if you can't do that walk and if you can't do that wave your arms about, BUT EXERCISE!

Best wishes guys,

Niall

[Dr_WHO]

Thanks for the positive message and telling us your secrets. For me it is scuba diving in the Caribbean at least twice a year. Cancer apparently does not like salt water at two or more atmospheres pressure.

[1969andy]

That means a he'll of a lot to me, Niall!

I have recently started a very similar nutritional strategy, but also gluten - free. Also high doses of Turmeric and am thinking of using CBD oil.

I have been on Bicalutamide and Tamoxifen for 2 months (dislike the strength loss and manboobs) and am due to have my first zoladex on Wednesday then start chemo in a few weeks.

As to exercise, have increased walking to daily (at least an hour with our or one of my daughter's dogs) and continuing to lift-weights 2-3 times per week: that's why I was attracted to your headline 😁

I have read many success stories on here with regard to "conventional" treatment which had countered my scepticism.

Having just watched Jeremy Corbyn, I want to experience decades of a wonderful new Britain under a socialist - Labour Government, something I have always dreamed of.

[NiallMcC in reply to 1969andy]

I also take Turmeric daily and in some cooking. I went on CBD oil for about 18 months. PSA did drop marginally, but quite honestly I am now a little sceptical, though I occasionally take a little! It's quite expensive! Though of course if I were convinced, I would pay the price! I also take Cayenne pepper extract daily, Vitamins B12 and D.

Keep positive!

Niall

[Hidden in reply to NiallMcC]

I’m hooked on turmeric.

[NiallMcC in reply to 1969andy]

I meant to say, ask your oncologist about Abiraterone (Zytiga), in my view it is a no brainer and a definite life extender. Don't be timid if you are told no without a really satisfactory reason. It costs the NHS about £100 per day, so you may encounter reluctance, but fight your corner!

[Hidden in reply to 1969andy]

Yep Andy both yours and Niels post hits the spot with me.

Also concur with your Corbyn dreams

[Hidden]

A very good plan. Enjoy life!!

[j-o-h-n]

to: NiallMcC "wave your arms about"

Waving my arms.... in Semaphores, translation: m-y-a-r-m-s-a-r-e-t-i-r-e-d.

Good Luck and Good Health.

j-o-h-n Sunday 01/28/2018 7:53 PM EST

[db1966]

Thank you for posting this. It’s just what I needed. I was diagnosed in December 2015 with a 212 psa. Doing great today. Long may it continue.

[ewhite999]

Great post! I’m only two years in since my diagnosis but following a very similar routine. Lots of exercise for body and mind. Much improved diet and a much improved outlook on life. I’m actually happier now than prior. Go figure? I fully expect a similar outcome to yours over the next several years.

[snoraste]

It’s always brightens my days when I hear great news like this. Keep them coming ...

[MelaniePaul]

Hi Nial.

That is a very encouraging post. Long may your good health continue!!! All the best from Dublin,

Melanie and Paul.

[NiallMcC in reply to MelaniePaul]

Go Raibh Maith agaibh! Rugadh mé i Baile Atha Cliath! I'm a Dubliner myself, but I live in England!

Niall

[MelaniePaul]

Ah Naill so you are from Dublin! Nice to meet you here. Where abouts in Englad do you live? Do you come home often?

Mel.

[NiallMcC in reply to MelaniePaul]

I'm originally from Ranelagh. Now I live in Kent (Since 1972). I used to come home regularly, nowadays every couple of years. Will come home maybe 2019.

[nobaday]

Hi Niall

I LOVE your story particularly as u are still going strong on my current meds Abiraterone and Zoladex. You also live near where I grew up ( Hastings) although I have been in Canada since 1984.

My PSA went from 74 to <0.008 and now Feb 2019 it is 0.013. Not sure if Abiraterone going to be stopping working or fact that I have a tumour ( presumably castrate resistant growing in my neck. Planning stereotactic radiation in a couple of weeks.

I love that you were doing ( hopefully still doing??)16 km a day... was that by car, bike or actually on foot lol!

I’m back jogging playing soccer and skiing. My radiooncocologist told me skiing was dangerous but the way see it much more fun than sitting on the couch!

What is happening treatment wise with you now in March 2019.?? Your PSA of now 24 indicates Abiraterone has run its course??

Let m know.