New to this site. January of 2016 had a PSA of 6 (found after normal blood test at age 50). Biopsy showed 8 out of 12 samples were positive.
Gleason score 4+3. Stage T3a. Had Radical Prostatectomy on Feb 17, 2016.
Decipher Test showed high risk of recurrence so had 38 treatments of radiation 6 months after surgery. Finished radiation 11/1/16. IMRT. No detectable PSA since surgery. Now I go in every 3 months.
During surgery, nerves were spared but not able to have erections still. On Cialis and using pump daily. Hope that comes back soon but I know everyone reacts differently.
I enjoy this forum. Thanks for the openness and support.
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bml123abc
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I'm sorry to here about your Dx. I don't like to use your case as an example but, this just proves, I think, that men should have PSA's done earlier than 50.
Are you on any form of ADT? If so, it may be a long haul. Next Saturday is my seventh anniversary, I was also Dx at 50. I've been on ADT from the get go, I didn't have surgery since it was already out of the prostate. Over time I got used to not having sex. Both heads are doing just fine, although I'd rather have it the other way around.
Thank you for your reply. No, I am not on any ADT. Just got engaged last night. So I found an amazing woman who met me before my cancer and is dealing with all the issues of surgery/recovery. I know I am lucky. Merry Christmas.
Hello bml123abc, Except for our ages you sound like a carbon copy of my fight with PC which began in September 2002.
Good Luck and Good Health and keep up the Good Fight.
j-o-h-n Saturday, 12/24/2016 11:51 AM EST
You might think about adjunctive chemo (short course) to wipe out any micro-metastasis floating around. I say this is that I also had a PSA of 6.2 and a Gleason 7 (4+3) and developed mets within a year......
Welcome to our group. Glad that you found us. Patience is now going to be your best friend. Your body has been shocked and it is going to take time to recover.
Sounds like you are in a good place as far as your Gleason score and post Op PSA. I am 57 and was diagnosed last March with a Gleason score of 9 (5 + 4). My PSA was about 6 but my PSA acceleration was the red flag.
I have had a robotically assisted radically prostatectomy with one out of fourteen local tested lymph nodes testing positive. I am T2c N1 M0. I have undergone sixe treatments of Docetaxel with two 3-month Lupron injections. (Based on the "Stampede" Clinical Trial conducted in the UK) I am awaiting my final PSA but it has been at about 0.01 - 0.1 until now, depending on the sensitivity of the lab testing..
I think your lower PSA is a good sign. Don't know about the radiation protocol but it sounds like an "insurance run". The younger age groups from 40 - 65 tend to have the most aggressive PC. However, I have read many positive articles from studies that show the potential for a long full life.
Hang in there on the ED. From what I have heard, it can take a while. I have pursued it only minimally due to the treatments and that I was already experiencing ED for quite a while prior to getting prostate cancer.
Staying in the "Now" and enjoying every moment is what is most important to me. I Expect to have quite a bit of time yet tp spend with granddaughters, see my daughter get through med school and my youngest find her way through college and into a happy life.
Take care and enjoy life with or without ED. You have new lease, so move in and enjoy!
Just saying hello and sending some positive energy your way. you've been through a lot mind body and soul ,so it's time to breathe . grateful you joined. these guys are awesome xoxo
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New here, diagnosed age 52, Gleason 10
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