senior needs help: Iam a 66 year old... - CHADD's Adult ADH...

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senior needs help

wanttobewell profile image
15 Replies

Iam a 66 year old senior being treated for ADHD. The clinic made me change my meds to new ones that do not work. I was taking adderall for the last 18 years and wish to return to that treatment. I have tried this new treatment for 2 months plus 2 months of no treatment. my quality of life has fallen to none. I can prove all I say. can you help me? I live in northeast Iowa and we lack doctors who understand us. no scam. why are we always being distrusted.i need a doc who understands us. 6-30-2020

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15 Replies

Wantobewell, why did they make you change meds?

wanttobewell profile image
wanttobewell in reply to

PER THE NURSE ASST THE UPPER MGMT DECIDED THAT ADDERALL WAS TO DIFFICULT TO USE ANYMORE. LIABILITY I GUESS

IT SEEMS TO BE THE DRUG UNDER...HELL IT MAKES EVERYONE LOOK AT ME LIKE I AM SCAMMING. I AGREED TO TRY AFTER A COUPLE OF MONTHS OF BEING OFF MY REGIMENT OF 18 YEARS. IT ALL CAME BACK SO I AGREED TO USE ATOMOXETINE IT TRIES BUT FAILS TO SOLVE ALL SYMPTOMS. MY QUALITY OF LIFE IS IN THE DUMPER NOW WHEN I AM THE BEST I EVER WAS.

in reply towanttobewell

Stimulants are clinically proven to work better than non, but it sounds like they are concerned about your health or they wouldn’t be concerned about liability. Have you tried supplementing with SAM-e and Vitamin B complex of 6, 12 and folate? Probably worth a short.

wanttobewell profile image
wanttobewell in reply to

NO ACTUALLY MADE STATEMENT OF CONCERN FOR MY GETTING ADDICTED AND STIGMA REGARDING SCHEDULE 2 DRUGS BEING ABUSED. ABUSE NOT AN ISSUE. I REALIZE I AM NOT A PEOPLE PERSON, UNTIL YOU GET TO KNOW ME. BUT IT'S A PREJUDGED ISSUE. IN ALL CASES IT HAS BEEN PRESCRIBING NURSES AT COMMUNITY HEALTH CENTERS. NO DOCTORS AVAILABLE WHEN ISSUE IS ADDERALL.

wanttobewell profile image
wanttobewell in reply to

HEALTH ISSUE NOT ISSUE

in reply towanttobewell

Sounds like you have a right to be upset then, especially since you don’t have a history of addiction and have been using it as prescribed! So you posted to find out what recourse you might have?

wanttobewell profile image
wanttobewell in reply to

What a coach? Unable to focus on new meds so finding a doc or service nearly impossible. It takes all i have text or type this.

78rpm profile image
78rpm in reply towanttobewell

If their major concern is the potential for stimulant abuse one thing some prescribers do is write prescriptions for the extended release version rather than the quick acting version. Adderall XR is an extended release version of Adderall and there are generic versions of it as well. Mydais is also an extended release medication that is similar to Adderall but lasts longer than the Adderall extended version. My understanding is that those who abuse the stimulant medications are primarily interested in the fast acting versions. For that reason, prescribing the extended release version is usually seen as being less risk for abuse and has less DEA scrutiny than the fast acting. Have you raised that as a possiblity?

wanttobewell profile image
wanttobewell in reply to78rpm

INTERESTING, I HAVE BEEN OFFERED THE EXTENDED VERSION A COUPLE OF TIMES BUT I BELIEVE IN THE ADAGE THAT IF IT WORKS WHY CHANGE IT. BUT TXS FOR THE INFO. PEACE

CloudsintheSky profile image
CloudsintheSky

Hi wanttobewell- Depression and anxiety could be the elephant in the room. I’ve been taken off adderall also. With the flippin’ virus, another bout of Breast cancer, difficulty in my 20+ year relationship, financial issues, STRESS, ANXIETY and MORE. The professionals with whom I am working have switched from treating ADHD to working on “depression”. I’m 75 and am just now learning how I feel..... It could be that your clinic sees something you don’t.

wanttobewell profile image
wanttobewell in reply toCloudsintheSky

THANK YOU FOR YOUR RESPONSE. FOR MANY YEARS NOW I HAVE BEEN ON THE SAME DRUG COMBO. MY DOCTOR WENT BACK TO DIABETES SPECIALITY. I HAVE NOT HAD A DOCTOR SINCE. MY REGION LACKS DOCS, BUT USES PRESCRIBING NURSES. I DO NOT HAVE A POSITIVE OPINION OF THEM. IF THEY HAD A REASON OTHER THAN TO TELL ME THAT UPPER MGMT WAS CONCERNED ABOUT USING ADDERALL, AS THEY STATED, DUE TO LIABILITY ISSUES. I RECOGNIZE MY ISSUES AND OVER THE YEARS HAVE DEVELOPED COUNTER MEASURES AND CONCERNED MY SELF BALANCED. DEPRESSION ENTERED WHEN THEY FORCED THIS CHANGE ON ME. THANK YOU FOR YOUR ASSIST. MY PATH , GOOD OR BAD IS TOO RETURN TO MY MEDS THAT BALANCED ME. PEACE BEST OF THOUGHTS TO YOU.

Timster profile image
Timster

Find a psychologist who specializes in ADHD who will see you /do an assessment and prescribe Adderall again..with COVID-19 it may have to be a virtual consult which is fine.

Another resource is to contact Gabor Mate - through his website/social media - ask him for a referral in your area - he is an expert /guru in this area and may be able to help you network. I started Adderall this year (I'm 58 with severe adult adhd) and it HAS helped me get through my day -focus, less anxiety...be productive - I only take 5 mg a day...I was on wellbutren for 15 years and it really started to create free floating anxiety/panic attacks so I stopped it...Take care and good luck .

here is Dr. Gabor Mate's linke to his website - contact hiim!!

drgabormate.com/

wanttobewell profile image
wanttobewell in reply toTimster

SORRY FOR DELAY IN RESPONDING. I AM CRASHING EMOTIONALLY DUE TO CRISIS WITH MY CHILDREN. I CAN HANDLE IT BUT IT EXHAUSTS MY MIND THAN BODY LIKE 15 ROUNDS IN THE RING. GRATEFUL FOR THE LEAD. PEACE BROTHER

DittoThat profile image
DittoThat

Just want to say I hope you're finding support. Sounds very frustrating to have the medication abruptly removed from your regimen! I second the suggestion to find someone who specializes in ADHD, even if that means a virtual video consult. Best of luck and hope all is ok with your family!

wanttobewell profile image
wanttobewell in reply toDittoThat

Thank you for your comment. I truly believe in speaking to ADHD people who feel like many of us do. Frustration with my inability to make others understand that my ADHD is real. I found a coach on this venue, Will Weiss, he did understand. it made a difference. peace

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