I was diagnosed in December 2018 with a 3cm AN, it was losing hearing in one ear (right) that prompted the ENT doctor to send me for an MRI. I had noticed symptoms for at least four years of slight imbalance, strange hearing sensations, strange facial and tongue sensations. All of which varied in strength and would come and go. I have only lost 20% of hearing in that ear.
I have to have translabyrinthine surgery (through the ear) due to size and location which means I will completely lose all hearing in that ear.
I went for a second opinion which agreed with the first so I know this is what I have to do. Radiation is not an option due to the size and possible swelling during treatment.
I have done a lot of research on internet, medical articles, and asked many questions to my medical team, whom I’ve met over the last two days (I live in the Netherlands and will go to LUMC), I feel as well informed as I can, and as I need to, be.
I am doing guided pre-operation meditations which are amazing at keeping any feelings of worry about the op. at bay, I have resigned myself to one sided deafness but think after the op. when I am actually living the reality I will mourn the loss (briefly I hope), but in my mind I don’t think it is it that terrible a thing to happen.
My operation is this Monday, 1st April, I will update afterwards as to how how recovery goes and how the symptoms are, I understand that the body can keep recovering for up to a year so if I have any facial palsy/headaches etc. I believe it will be temporary and can still go up to a year after..
Best wishes to all of you wherever you are in your AN story!