lichen sclerosis

[Diolch1]

been diagnosed with this in April. Gynaecologist has given me Dermovate and told me how to phase down frequency. I’m now suppose to be using it once a week but the itching is still so bad it’s driving me mad. ( not literally). He wants to see me again in 12 months , do I just carry on or should I get back in touch with gynaecologist.

[wobblybee Administrator Pioneer]

🤔 According to info for the medication..symptoms should improve but it may take up to 4wks. For peace of mind, discuss this with your GP.

nhs.uk/medicines/clobetasol...

[Brambledoggy]

I’ve been recently diagnosed with LS (perineum) and used Dermovate for over a month, symptoms pretty much gone, but absolutely convinced it’s created post menopausal bleeding for me so have stopped using it to see if it’s coincidental or not. Bleeding started heavily after using it having not bled for nearly 3 years. I had no idea what my nightmare itching at night was, presumed it was yet another menopause symptom. It’s not a nice thing to deal with. Persevere a bit longer and if no joy, get back to the GP.

[moo196]

I was recommended to use betnovate Rd twice a week after getting things under control.plus a morning and evening dollop of epaderm ointment (about a teaspoon full) on the area to moisturise and protect it. Plus fortnightly fluconazole because LS and thrush are often found together.

[Farrugia]

Hello - I had to initially use Dermovate for longer than recommended to begin with and then I gradually tapered down to twice a week. When things are really good I might only use it once a week but a lot of women are recommended to use it twice a week as a maintenance dose. It’s really good to use a good moisturizer after every toilet visit. Avoid all fragrances in anything you use egg toilet paper, laundry wash for knickers. I’ve found reducing sugar in my diet really helps too. If peri or post menopausal then vaginal oestrogen can really help. If you do Facebook there’s a really good private group called Lichen Sclerosis- sclerosus uk group for women. (Or something like that)

[Hackne]

i also take a daily hayfever tablet and that helps calm the itching. I used dermovate for a while then it stopped being as effective. Go back to your GP - there are one or two other things to try.