Newbie, looking for advice : Hi all, I’ve... - PCOS UK (Verity)

PCOS UK (Verity)

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Newbie, looking for advice

norso profile image
4 Replies

Hi all,

I’ve come on here to hopefully find some answers or some guidance of what may be happening to me. I am 21 years of age and for most of my life struggled with my weight at my biggest I was 148kgs at the age of 18. I used to have a lot of irregular periods, excessive hair growth, heavy bleeding and severe pain before periods. When I was 18 I got gastric sleeve surgery and have now lost 84kgs, my periods became regular and the pain did reduce so I didn’t think much of it.

Two months ago I started getting serious pain in my right side, feeling nauseous constantly, constant cramping and was told by a GP to go to hospital as it was appendicitis. After waiting 7 hours in emergency and several blood tests I was sent home with no answers. For the next 2 weeks I was getting constant blood tests ultrasounds on my whole upper half with no results. They have now resulted it to IBS, I have been given medication to take for that with very minimal success.

What I did take note on my ultrasound notes was that my right ovary was bulky? And 2 20mm follicles found. Is this something to be concerned about?

It’s been two months and I have lost 13kilos due to nausea, the pain is still at the same stage and nothing seems to be improving.

I hope I can find some sort of understanding here as I am very lost.

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Hols969 profile image
Hols969

Ovary being bulky is pcos so nothing to worry about. I would ask to be checked for endometriosis as pain is more associated with that rather than pcos, it needs to be a laparoscopy to check it so there isnt a simple way of getting diagnosis. It is not uncommon to have endo and pcos either and sadly often they seem to believe pain is pcos but it isn't - have you been referred to an endocrinologist for pcos, if not ask to be as they specialise in both pcos and endo.

norso profile image
norso in reply to Hols969

I haven’t been directed anywhere all of my Gp’s have been telling me it’s IBS and to change diets.

I have an appointment with my gyno and hopefully can’t refer me from there.

Thank you so much for your advice I have no idea on any of this! So your help goes along way!

Hols969 profile image
Hols969 in reply to norso

Sadly they still put everything down to pcos which isnt always the case, you may need to push for a referral to an endo, a gynae is really fanny or fertility, an endo is the hormone imbalance which is what we have.

Good luck, take your Ma or a friend to your appointments so you have 2 pairs of ears and they wont be able to fob you off. Let me know how it goes.

norso profile image
norso in reply to Hols969

Thank you so much! Great advice I will keep you updated!

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