I have PCOS and had no period for over a year...what should I be doing?

I have PCOS in both ovaries, I have been diagnosed for two years but never had normal periods. I haven't had a period in well over a year, I am only 19 and the past 6 months have been getting a pain in my bottom right side of my abdomen.

My bowel has been tested and as have my kidneys and appendix but nothing there. I am certain it is related to my right ovary (this is my worse out of the two) as my other symptoms are seemingly getting worse. My doctors keep throwing me back and forth and I am immensely fed up.

Has anyone got any advice on what I should be doing? I do want a family one day and I am feared that this is going to stop that.

5 Replies

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  • Hi😊 I'm 19 too! Are you on any birth control? That will help regulate your cycle and maybe you should keep getting tested for that pain because it could be endometriosis which can be linked to PCOS.

  • Hello! No I was on birth control and then it was during my break with the pill I noticed I wasn't coming on. So I stopped taking it and noticed I wasn't coming on. Went back on it and was no change, I tried various different ones also but no luck ! My mum has endometriosis but doctors refuse to look at this option because they've been rubbish !!

  • Keep pushing the doctors because they need to keep looking into it. I sometimes get pain there and I just put it down to my ovaries trying to work but goes away within a day. X

  • Mine comes every now and then and the majority of the time it is really painful! I definitely will thank you x

  • You must make sure you have 4 periods a year to keep your uterus healthy, do not let them fob you off as it can cause issues not having a period.

    I would ask to be referred to an endocrinologist as pcos is there area, if you are suffering from pain it could well be that you have endometriosis as it is not uncommon to have both conditions, An endo is specialist in both areas.

    Look at the NICE guidelines on PCOS as it advises what to expect from the NHS, can you take your mum or someone with you to your next GP appointment, sometimes you do need to push for a referral and it helps having someone else there!!

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