first time poster, I'd better explain a little about me (apologies, this may be long!)
I was diagnosed in 2001 at the age of 26 by my lovely GP who then moved away from the area :(. Diagnosis was made by blood test results, ultrasound and symptoms (increasing hair in the wrong places, acne, darkened skin under arms etc). I was put on Dianette which was wonderful, but it made my BP too high so switched to a POP pill. Saw a consultant who basically said come back when you want to conceive. Since then I've had no help or assistance and have been managing on my own.
I received a questionnaire from the GP practice about frequency of periods a month ago. I returned that stating that it was maybe 1 per year. I got a letter asking me to contact them about it and detailing treatment options. Obviously I checked up on where this information had come from and landed on the NICE PCOS site. I've never had screening for cardio risks or glucose intolerance. Pointed this out to the Dr who arranged for a blood test. Results have come back as normal (tested for cholesterol, liver things and HBA1c).
I'm not very happy with the lack of help or treatment options. I believe I'm insulin resistant but this was ignored in the past. After 17 years I'm still larger than I should be, hairy, darkened skin and at 43 still get acne. Although the HBA1c came back as normal (37 mmol/L range 20-42) I eat a keto diet and was a bit surprised it wasn't lower.
My questions are, what tests should I ask for and what should I expect them to do? Do I need to see a consultant and if I do, should it be a gynae or endocrinologist? Is HBA1c an accurate test of insulin resistance? I've had no hormone tests since I was first diagnosed. Should these be repeated?
If there's anything else I should ask or expect, please let me know. The more I think about it the more annoyed I get!