Saw my consultant today and she said " platelets are under control " 375. She was going to do venesection but h.b down to 14.4 and hematocri...
Too Iron Deficient?
Hi guys, just wandering if anyone could tell me anything about their experience with this. At last count ( July ) my ferritin was 16.1, but h...
New PV diagnosis Dec 17
Hi all, I've just been diagnosed with primary PV with confirmed JAK2 mutation aged 41. Always had red cheeks but think my diagnosis was hidde...
Newly diagnosed and scared
I have been started on hydroxyurea and Alloprinolol for prevention of gout for the 1st month. My haematology consultant has decided against v...
Haematocrit of 47. Hospital failed to get any blood before I fainted....
Hi question for people with PV was at the hospital a week ago and blood levels fine apart from hematocrit which was 47% how long do people ge...
Interferon how quick
Been on Pega for about a month, plus reduced Hydro, but my hct is going up.. Does anyone know how long Interferon takes to get some results?...
I was diagnosed in April & have had venesection almost every week until 3 weeks ago, having blood tests again this week & seeing the consulta...
Hi, I am new to the forum having been diagnosed with PV in May 2017 ....
Starting on Hydrea
My platelets are down but still high they are 4565 but they were 4756 3 weeks ago so there is talk of me starting on hydrea. I have had a few...
No happy medium. Advice needed
Morning all I had my 8 weekly appointment yesterday and received good and not so good news. My HCT was at a fantastic 0.41 so no venesection ...
Just found out I have pv
Hi everyone as you can guess I am new to this site which was recommended by my consultant. I have been told I have pv with negative jak2....
Looking forward to my venesection
Hi Guys, I've come to the conclusion that the majority of the public don't understand what fatigue means and they think we are a bit tired wh...
I've been on hydroxycarbamide four days a week for a couple of years yet I've now got too many red blood cells....
Feel like I'm going to pass out
I've noticed the tiredness is getting worse along with the rest of the symptoms you get with PV ....
PV & Venesections
Hi community, I've was diagnosed with PV about 3 years ago and have gone through many tests including a couple of sessions at Guys hospital....
To BMB or not? And can I request one?
My consultant is unsure as to whether I have ET or PV, she thinks time will tell but I'm beginning to think I should ask for a bone marrow bi...
Help yourself .eat to be well ...
I had my 8 weeks check up at the oncology unit at hospital yesterday ,,my results were excellent my blood tests surprised the specialist doct...
Hi I was recently diagnosed with PV jack2 I have had 9 pints of blood removed via venesection, & my levels have dropped, seeing consultant ag...
Persistent symptoms even when HCT is OK?
Hi everyone Since September 2016 I have had constant PRV symptoms - Severe pruritus, headache, fatigue, joint aches and bruising easily. Even...
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