I've recently been under-going treatment for GPA and have responded really well to rituximab which I was given about 2 months ago. My consultant has today informed me that he wants to put me on a daily dose of Azatheoprine to help maintain my remission (basically because Rituximab is too expensive).
After doing the standard 'google' of the drug I've seen that there's some pretty nasty side-effects and am very dubious about taking the drug at all. I haven't yet started a family and don't intend to for a few years yet (only 27) and have seen that its advisable not to take the drug if this is the case. There's many other side-effects which I don't like the sound of, would be very appreciative to know of any readers experience of this drug and what it actually does to you?!
I'm also thinking that I will just tell my consultant that I'm not comfortable taking the drug so he'll have no option but to give me another dose of rituximab in 5 months time. Is this also something anyone else has done in the past? I appreciated the NHS is on a budget and I don't want to sound like a douche but why should I/we have this alternative drug when I've been told by my consultant that Rituximab is the best thing for people with my condition?!
Look forward to your responses