If you read these messages over your breakfast croissant, I should stop now, and I apologise for the revolting nature of the question.
On one of my stays in hospital, the chap in the opposite bed also had Wegener's, and a pretty torrid time he had too - his lungs filled with blood, he spent two weeks on a life-support machine - and this, doctors said, was because his WG affected his lower respiratory system.
I, on the other hand, have upper respiratory problems, and one of the ways it seems manifests itself is in the production of abnormal quantities of what I will politely call nasal mucus. Ever since I have had WG, I have had the problem, but have never heard of anyone else mentioning it - perhaps through embarrassment. Even though I have been ANCA negative for many years and, with the exception of a statin and a blood pressure tablet, have stopped medication, I still have this problem, which gets worse if I have any kind of infection. It can be quite embarrassing if I am out anywhere.
Does anybody else suffer this too?