John Mills is in the local paper over Christ... - Vasculitis UK

Vasculitis UK

7,780 members6,756 posts

John Mills is in the local paper over Christmas.. :-)

John_Mills profile image
John_MillsVolunteer
4 Replies

matlockmercury.co.uk/news/l...

Written by
John_Mills profile image
John_Mills
Volunteer
To view profiles and participate in discussions please or .
4 Replies
hamble99b profile image
hamble99bVolunteer

excellent. proud of you John!

respect,

sandra.

deniseann profile image
deniseann

Well done John .

Denise xx

Jann profile image
Jann

Well done and great photo.

Christophene profile image
Christophene

Dear John,

I have been a member of HealthUnlocked PMR and Vasculitis almost since I was diagnosed, first with Vasculitis, and later with PMR in 2016 although the "new" website has me as joining in 2019 which is not accurate.

.

I found it a welcoming place and comforting place. However, there are 2 moderators in the PMR community, who are ,as a lawyer, and before that, a psychiatric nurse, I can say with reasonable certainty are mentally unstable to be moderators.

I will no longer participate in HealthUnlocked in any community where one of both has had me blocked, and the other has posted a defamatory comment about me for no reason whatsoever in the public forum which is actionable. I would not waste my time . Instead of a support group, it has at least 2 attackers.

In my opinion, as a retired nurse-attorney, ( and public advocate for the mentally ill, won an American Jurisprudence Award )none of which I ever revealed, it feels like an attack group, not a support group. I received a lot of complimentary comments from 2 other moderators, and other members recently, and I think that triggered considerable jealousy on the part of 2 very insecure people.

I will not name them, unless you ask for user names, but since I do not need additional stress with my disease, I am no longer going to participate in HealthUnlocked. In concept, it is a lovely idea, but, as it turns out, it has become a source of stress and unpleasantness. Most members are very supportive and kind, but these 2 are the opposite and wear their moderator hats as crowns.

I will say no more unless you ask for further details. I did contact Candy, but it being the weekend, have had no response which I completely understand. She need not respond at this point. There have been a couple of members who contacted me in the private email section in support and have spoken , in what I hope is really private , calling them names I would not use.

Thank you for reading; I thought you should know. I am in the US and don't know anyone personally. Goodnight.

Andrea A. Carb, BA, RN, Esq., Retired

You may also like...

Congratulations to John Mills for his MBE

John's award....

John Mills

newsletter online https://www.vasculitis.org.uk/news/autumn-newsletter-out-now Thank you Susan...

We are deeply saddened to announce the recent passing of John Mills

BBC NEWS - Terminally ill MBE winner to receive award in local pub

those who have not seen this...

Faith in local media restored

Bromsgrove Standard (see link):...