mum had an appointment at hospital today and found that the person who was looking after her had left and that he was a registrar and not a consultant. we was never informed of this. this registrar at said that mums muscle problem was nothing to do with illness and separate issue.
Today another registrar tried to see us. I made it clear in no uncertain terms that I wanted my mum seen to by a consultant. the dr/consultant whose care my mum is suppose to be under then sat in with us with the registrar. He says that muscle problems could be down to CS most likely the steroids she is on. He has requested for MRI (to see what impact if any on nerves) which we will receive an appointment for in the post. blood test also done today. though dose of mums steroid and mmf have been kept same he did suggest that may lower steroid dose.
I also have an appointment with mums gp this Friday to request for a second opinion.
how do you know when condition is under control?? this was going to be my next question but we was rushed and told he has other patients to see - clearly was not too pleased that registrar only had not seen to us. I insisted she be seen by him in the future and not his registrars which he agreed to.
best wishes to all.