Orders for the Route Map, T shirts, hoodies, polos and fun t shirts.

[John_Mills]

I have just finished packing and parcelling up the last orders for Route Maps for vasculitis, t shirts hoodies etc today... so if anyone has not received theirs by Saturday Please let me know.. we have been absolutely inundated with orders and I have struggled to keep with them.

[Derek]

I was wish to order a Route Map. can you give me the necessary details how I should do this. I need a name and address to send a cheque to please. Thanks, Derek.

[John_Mills Volunteer]

please send me your address by private message.. and I will tell you where to send the cheque..

[Derek in reply to John_Mills]

Sorry I'm late replying, much to do with family of late. Address: Derek,Wheatland, 37 Northdown Drive, Beeston, Nottingham NG9 5NT.

I am also interested in the sub-glottic stenosis study in London but not sure what the criteria is. I have CSS (This has a new title?) and my throat is a constant problem to me. Hoarseness is predominant and though I swallow without difficulty any food, drink or saliva can irritate and course me to cough.

I hope I'm not too late for a Route Map.

Derek

[John_Mills Volunteer in reply to Derek]

I will post you a copy of the Route Map I have copied your address down if you would like to delete your post from the blog.. It is probably not a good thing to keep your address on the blog

;-(

I think the criteria is that you should have had a tracheostomy but will check this out with John.

Thank you

Susan

[Llinos]

Thanks you John and Susan for all your hard work WE ALL really appreciate it xxx

[John_Mills Volunteer in reply to Llinos]

Thank you...Did you have a good time today at the meeting? xx

[Llinos]

It was fantastic, Jackie did really well,was amazed at the amount of people there. My Mam and daughter came too. Thought I'd had it bad with my WG but listening to other's stories was tough but I think we were all happy meeting each other and with the way the group just got on so well. Looking forward to the next meeting xxx