Hemorrhagic vasculitis treatment: Hi My son... - Vasculitis UK

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Hemorrhagic vasculitis treatment

Egorka profile image
6 Replies

Hi

My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help.

We are outside the UK, but can come and spend needed time in UK for treatment.

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Egorka profile image
Egorka
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6 Replies
2534 profile image
2534

Professor David Jayne at Addenbrooke’s Hospital Cambridge University is one of the very best. He is only on the NHS, not private I believe. There is also Professor Rashid Luqmani at the Nuffield Orthopaedic Centre Oxford. He may have a private practice as well as an NHS one

AmyS1 profile image
AmyS1

You would need a specialist at a children's hospital like Great Ormand Street Hospital! The others mentioned only treat adults!

Egorka profile image
Egorka in reply to AmyS1

Looks like the perfect solution and they have international services. Thanks a lot for the advice 😀

Main1234 profile image
Main1234

hi think to get expert advice and support the vasculitis helpline is your best bet. They are extremely helpful and will be able to signpost you to a suitable consultant.

Wishing you all the best in this journey

Egorka profile image
Egorka in reply to Main1234

Thanks! Will do that!

ElaineRH profile image
ElaineRH

there is a new specialist vasculitis unit in imperial college hospital Hammersmith in London that may be a good place to start…

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