Avacopan - a new medication that will soon b... - Vasculitis UK

Vasculitis UK

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Avacopan - a new medication that will soon be available for severe GPA and MPA vasculitis patients.

zoe69 profile image
zoe69AdministratorVolunteerVasculitis UK
10 Replies

Click on the link for the announcement from Vifor Pharma:

viforpharma.com/tavneosr-av...

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zoe69 profile image
zoe69
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10 Replies

That sounds promising, thanks for sharing 👍🏼

Investigator1 profile image
Investigator1

Hi zoe69 this seems like a big breakthrough mainly due to the fact that it seems to activate before the cell has been attacked thus leaving the immune system broadly intact. Brilliant news.

zoe69 profile image
zoe69AdministratorVolunteerVasculitis UK in reply toInvestigator1

It is! Furthermore, it is the first medication ever being approved in the UK for vasculitis that hasn't been used for other illnesses before. I am personally chuffed as well, I appraised the medication, it was my first appraisal for NICE.

Investigator1 profile image
Investigator1

Well done to you! It does make your day hearing things like this. I am only a baby in illness terms as my illness was diagnosed very quickly and managed very effectively but the bravery and optimism shown by people on here gets us all through. I guess in time Zoe that people like me who are on maintenance therapies like Rituximab can look forward to possibly having something that at a lower dosage will preserve the immune system.Again thank you for sharing that, it’s made my day.

Mooka profile image
Mooka

That looks like really good news. Thank you Zoe for your part in this and the Guinea pigs that have helped. I hope I never need it 🤞 but it has to be an improvement on the devils tic tacs.

2534 profile image
2534

Wow! Does it have to be given with cyclophosphamid/rituximab or can it be stand alone?

jgold profile image
jgold

I also take a certain personal pleasure to read this. Back in 2014/15 I took part in the very first patient trials of this drug (then called ChemoCentryx CC168) as an alternative to prednisolone. Every fortnight I had to visit an office at the hospital which dispensed trial drugs. I was required to sign for it each time. The dosage instructions were different on each occasion and I had to submit a record of exactly what I took and when. To this day, of course, I don't whether I was taking the CC168 or the prednisolone. A totally passive role on my part, but nevertheless nice to see things come to fruition.

Varp profile image
Varp

Thank you for your input and notification. Great news for all.

tomo1854 profile image
tomo1854

Do you think this will be available across all hospital trusts?

zoe69 profile image
zoe69AdministratorVolunteerVasculitis UK in reply totomo1854

I would hope so, but we will know more soon.

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