I was diagnosed with EGPA I’m August last year - nasty experience as fellow EGPAers will know. After 6 nights in hospital we started off with lots of prednisolone (60 mg) and methotrexate but as we reduced the steroids I had two flares in the next two months and had to go back to 60mg. In November I managed to get myself referred to the EGPA specialist team at Guys & St Thomas (not a simple process as my GP is out of the GST catchment area - but thank you to Frimley Hospital for helping me with this).
At GST the specialist EGPA team is actually based in the Chest clinic so they are focused on the asthma part of EGPA and the management of eosinophil levels through MAB treatment. It may not be for everybody but my own experience has been amazing so far. No further flares, Pred down to 6 mg and my mountain biking level pretty much back to where it was pre August.
Just thought that I should share this experience. Wishing everyone the very best - keep positive!