I asked my GP to refer me to Prof Justin Mason in London as advised by a few of you on here. Prof Mason accepted my referral and I saw him the other day. He is so nice and extremely knowledgable with TAK.
He is now taking over my treatment plan and managing my support hub.
He put me at ease and answers so many questions. There is light at the end of the tunnel, even if it might take 5 years at a time.
Thank you to everyone who suggested him.