New Website for ANCA Vasculitis Patients and Carers

[John_Mills]

SEE ME HEAR ME

myancavasculitis.com

[Nadine99]

It's great to see more info but why another website?

[Suzym2u Moderator Vasculitis UK in reply to Nadine99]

It’s only for the ANCA Types and gives a different perspective. VUK aims to provide essential information for people suffering from 18 different types of Vasculitis.

The Vifor website sets out to capture the interest of those among health professionals and the public who do not have an understanding of Vasculitis. The new website does not set to compete with the VUK website but to complement it. It is a collaboration of more than one European support charity

[Katie18 in reply to Nadine99]

Vasculitis patients & carers from a few European countries helped to produced the website with pharmaceutical company Vifor Pharma including John, Susan & myself. It features our stories as videos & we helped to check the final content. The aim was to help provide more information for both patients & health professionals about the disease - there are so many people who have never heard about it. Vifor Pharma has an interest in rare diseases.

[AndrewT]

Dear John,

I have Looked At, this site, however it's not quite 'Finished' yet- I'll look again, in a few weeks. Thank you, as always, for the Heads Up on this.

I trust you, and Susan, had a Happy Christmas. Did you see your grandchildren? I do hope so I know that, you both, Love them so...By the way, how old are they now? I'm guessing about eight?

Once again, thanks for the Info. and Love to you All. Happy New Year 2020

AndrewT

[Suzym2u Moderator Vasculitis UK in reply to AndrewT]

We hope you enjoyed Christmas too Andrew ... 😊