Egpa neurological question: Does anyone have... - Vasculitis UK

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Egpa neurological question

Cathywp2 profile image
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Does anyone have experience with egpa affecting them neurologically? I had brain issues/damage three years ago and I am recovered to the point that I have some near normal days now and then but if I encounter any stress at all I have powerful reactions. I thought I just had to try harder but now I am wondering if I have a neurological disorder that is causing my symptoms. I go from feeling ok to shaking, stuttering, weak legs, can't think, visual orbs, weird tight elastic glove sensations, dizziness, sweating, almost instantly. Today I felt good. I went for my usual blood test. No problem til the technician hit a nerve or tendon and I had to ask her to stop and it hurt a lot. I had stress. Only a bit and then it was ok but I could hardly make it up the stairs and was overrun with all those above mentioned weird reactions and they will stay with me all day. I thought this was all caused by prednizone but maybe not. Thoughts?

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ElaineRH profile image
ElaineRH

Hi Cathy, yes I too have neurological issues. I have some terrific headaches, vision issues muscle weakness and many of the things you mention. Any other neurological cause was ruled out by the neurologist and said it just one of the facets of EGPA.

Elaine

Cathywp2 profile image
Cathywp2 in reply toElaineRH

Hi elaineRH and thank you for your reply. Well I am puzzled by your response however. Do you think it is common for people with egpa to have these sorts of symptoms? I had previously thought that I must have some hormone problem or something else in addition to egpa. I think that the whole field of eosinophilic disorders is new and not well understood. I live in Canada and I had never even heard of an eosinophil until three years ago.

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