Changing from Prednisone to Hydrocortisone

[dizzy49]

I am in remission for at least 6 years, Vasculitis (MPA) have gone from 6mg Prednisone to 20mg Hydrocortisone, I became really ill quite quickly and it was upped to 25mg Hydrocortisone. I am still in quite a lot of pain and stiffness along with low mood. Has anyone else had this experience, if so how long did it take to stabilise on the hydrocortisone? Would appreciate anyone nes experience. Thanks.

[Q-owl]

Hi I've only joined this group today. I've got Polymyalgia Rheumatica and possibly PAD too. I'm taking 6mg Pred and struggling to taper my dosage by 10% a month (actually over 2 months now). It sounds to me as if you might have withdrawn from Pred too suddenly, even if you are converting to another drug.

[ludo]

Hi. I had the same symptoms when my 5mg prednisolone was changed for hydrocortisone. I only lasted a few weeks before I was put back on prednisolone. A subsequent synacryn (spelt wrong I'm sure) blood test showed I should stay on prednisolone. I've been ok since. It's not ideal but I prefer that than the other symptoms.

Hope this helps

[Hadley1234]

Hi i have 3 vasculitis deseases...and started on 60mg pred and have reduced to 10mg with Tocilizumab Iv aswell ...the consultant wanted me off the steroids...so put me on the equivalent of Hydrocortisone instead ...i very quickly felt exhausted and unwell i took them for a month to give them a chance ...then made a early appointment to the Vasculitis clinic ...and said i wanted to go back to Prednisolone and i have and feel much better ....i have to go to the endocrinology clinic as tests have come back im not making any Hydrocortisone of my own .....hope you get on well