I just posted something on my own personal Facebook wall, and thought I should post something here too. I have cerebral vasculitis, for 25 years this year, falling ill in 1994 aged just 22. One of my longest symptoms is severe bladder incontinence, from the brain damage - my brain can’t control my bladder properly. Sometimes cerebral/CNS patients have bowel problems too.
I wrote an awareness piece for the Vasculitis UK newsletter, mostly to educate medics, who often don’t realise this can be affecting their patients, and that it might be from the vasculitis. It’s in the Autumn 2018 newsletter on page 13. I’ll give a link.
Anyway if you have brain vasculitis and incontinence it might be your vasculitis, it needs to be investigated properly (including by an urologist), and there may be things the medics can do to help you. If like me you need to wear pads permanently (for nearly 25 years now in my case) you should normally be able to get these free through your local NHS - I have, for nearly 18 years now, and have my annual review with the continence nurse tomorrow. Key thing is don’t suffer in silence, and get the medics to help you. Read my piece for more info.