Clarification please: Hi my husband is in drug... - Vasculitis UK

Vasculitis UK

7,759 members6,736 posts

Clarification please

Main1234 profile image
5 Replies

Hi my husband is in drug reduced remission. Diagnosed with GPA in August 17 usual treatment given, now on 7.5 msg prednisolone and aza . Prednisolone reducing to 5 mgs soon. All blood tests ok and lungs fine. Long may it continue.

Am I correct in thinking that there should be no more damage now? He has a continual runny nose, clear fluid and occasional cough. He also has watery eyes but feels well in himself.

Thank you.

Written by
Main1234 profile image
Main1234
To view profiles and participate in discussions please or .
Read more about...
5 Replies
gilders profile image
gilders

Hi,

Some of the initial damage may not repair, but whilst in remission vasculitis will not be damaging anything. Having said that, some delicate areas such as kidneys (if they were involved) can deteriorate some more for 2 reasons. Firstly, once the vasculitis has stopped damaging the kidney, scar tissue is created as the body heals. This scar tissue in delicate areas change cause it's own damage. Secondly, once kidneys have been damaged, a "vicious circle" begins where the kidney can deteriorate even when in remission. For example high blood pressure damages kidneys and damaged kidneys cause high blood pressure.

Main1234 profile image
Main1234 in reply to gilders

Thank you. It was his lungs and he has no kidney damage, all tests cane back clear.

Thank you for your reply, this disease has a life of its own

Traceybub profile image
Traceybub in reply to gilders

Hopefully everything will settle down, in my case have only once managed to get down to 5mg of prednisolone now up to 30mg daily.

PattyMPA profile image
PattyMPA in reply to Traceybub

I got a book as soon as I started Prednisone, Coping With Prednisone. Very helpful with both a physician and a patient weighing in on all the topics.

Jeffo profile image
Jeffo

Hi, agree with gilders, however looks like your husband's vasculitis is confined to his respiratory tract and indeed test results confirm remission with no further damage to other susceptible organs. That in itself is great news and any further problems will likely be down to wear and tear with natural ageing. Can't legislate for further chest infections which may well occur as he would be susceptible. Hopefully though he will continue to do well. Best wishes.

You may also like...

Please read the leaflet and then do the survey

for those that have vasculitis is steroids (prednisolone). Vasculitis UK and other patient...

Imperial College Help please

agreement that I see a rheumatologist as well as continuing to see my renal Consultant. A few...

Reducing prednisolone

My husband has GPA and is reducing his prednisolone to 5mgs this week from 7.5 mgs. He is in drug...

Uveitis treatment opinion please

vasculitis of the eye) for about 18 months now. Have had several steroid implants in the eye and...

Advice re azathioprine and alcohol please

showed lungs now clear no other organ involvement (fingers crossed) . Have read drug can cause...