Hello, I am new here and am wondering if something Im experiencing could be linked to my possible diagnosis of vasculitis.
I have not been diagnosed with anything quite frankly but my Dr is thinking it could be vasculitis or another autoimmune disorder. Its a long story (14 + years to be precise) I will give the short version.
For as long as I can remember I have had daily headaches, sometimes they are better and sometimes they are debilitating. Within the last 14 years I have experienced mini-strokes and a massive seizure and other symptoms that seem to add onto of each other and never really go away like whole body pain/heaviness, extreme fatigue, pounding/fluttering heart, feeling my pulse intensely throughout my body and now my hands turn purple when they are below chest level. It was found that my vertebral arteries were both constricted and dissected causing aneurysms in both the left and right artery.
Over the years it has become more difficult and more painful to get an IV or any blood taken. It takes at least 5-6 tries before they are successful. I used to be one of their favorite patients because it was so easy to take blood or put in an IV. Does vasculitis make getting an IV or blood test more difficult and painful? When I explain my concern with this to my Dr's they seem to not believe me. Any info would be appreciated, thanks!