I’ve just had a blood test results that indicate positive ANCA antibodies, nuclear, and ANCA LIU Of 57. My blood report suggested the doctor should discuss systemic Vasculitis, a condition I’ve never heard of before so I’m very new to this. I also seem to have high urea and reactive c-whatever that means.
I was diagnosed as having autoimmune B12 deficiency last year and am on 3 monthly B12 injections. I’m also on a medication which has a little known side affect of causing agranulocytosis yet I do have enough antibodies to cause note.
I have loads of symptoms and had rhinitis for a couple of years after 2000. I was wondering if anyone has advice on early days or how to get GPs to be careful and thorough. I’ve frequently asked for referral for GI symptoms but it’s refused. I’m concerned that the GP will also ignore blood reports which suggests referring to rheumatology, GI.
I have a double appointment booked in mid January but am worried I’ll come back being labelled as anxious (which is true but only in that I want an accurate diagnosis and effective treatment).