Hello everyone. I'm newly diagnosed with chronic idiopathic urticaria, leukocytoclastic urticarial vasculitis and cold urticaria. I'm on Ozalimutab, Lukair, 4 different types of antihistamines, ranitidine for another effect on the urticaria. I'm just starting Imuran on a gradual 2 week increasing dose and prednisone 50-75 mg daily.
My urticarial vasculitis is not controlled at all and I have acute angioedema and look and feel like roadkill. I itch all over, inside and out. It's having a huge impact on my life. I just want to be normal.
Is there anyone else on here with this? Have you found anything that has worked yet? Anything to cure the swelling or itching? My lesions range from a cm to several inches in size.
I'm terrified of the risks of taking Imuran, but the high dose steroids are having a huge negative impact too, so I have no more options. I have a few autoimmune issues in addition and have already had one battle with cancer. I still have school aged kids, so I need to find a better way.
I would be grateful for any help please
Thank you.