Advice on Prolia please: Has anyone had Prolia... - Vasculitis UK

Vasculitis UK

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Advice on Prolia please

102637 profile image
12 Replies

Has anyone had Prolia injections for osteoporosis caused by steroids who has GPA

If so,did you have side effects from it?

Is there a natural treatment for osteoporosis without more drugs???

We take a tablet to treat one thing which in turn causes something else that needs treating .....so on it goes!!!

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102637
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12 Replies
PMRpro profile image
PMRpro

We have someone on the PMRGCAUK forum who raised her bone density from -2.1 (requiring intervention) to -1.6 (no treatment required) in a year just by exercise, eating well and calcium/vit D/vit K2 supplements (I think the vit K2 was supplements as well as dietary K2 but I'm not sure).

I'm sure she'd be delighted to tell you about her experiences - she really has read up on it very widely and her info is reliable.

healthunlocked.com/user/her...

102637 profile image
102637 in reply to PMRpro

Thank you so much for that I would be really interested in finding out more about it

PMRpro profile image
PMRpro in reply to 102637

Then do send her a pm - and tell her I sent you!!!

102637 profile image
102637 in reply to PMRpro

How do I send a pm? I'm not very good at this!!

Christine

102637 profile image
102637 in reply to PMRpro

Could you please tell me how I can get in touch with the lady regarding treating osteoporosis naturally

Thanking you

Christine

PMRpro profile image
PMRpro in reply to 102637

In the post above there is a bit that is in blue - that is a link to her profile page. Here it is again:

healthunlocked.com/user/her...

At the top right, on the banner is a green box with follow and next to it a white box saying message. Click on that and a page will come up with New Message where you can write her a post that will only be seen by her but otherwise it is no different from posting here. It already will have her address there automatically - you just write your post and click on Send

102637 profile image
102637 in reply to PMRpro

Thank you so much for your help in pm I will message her

Monique1649 profile image
Monique1649

I took prolia for osteo caused by steroids for M.S. I did not have problems. It is the long term effects that scare me.

102637 profile image
102637 in reply to Monique1649

Hi Monique

Sorry only just replying my iPad is playing up

Do you mean you stopped the prolia because of long term effects from it or from osteoporosis??

Monique1649 profile image
Monique1649

Thank you!

Monique1649 profile image
Monique1649

I did not complete year 2.

Mal06 profile image
Mal06

Hi I've been having for about 4 years now - every 6 months. It's very expensive and GP's don't like to pay fir it. I e had no amused effects, previously had various tablets that did make me feel awful hence consultant recommended change over to injection. Hope it helps. Take care.

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